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Joined: Oct 2011
Posts: 805
KP5 Offline
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Oct 2011
Posts: 805
Thanks for the update Ray. I was just thinking last night that you sort of went away.
Hope that beautiful baby is doing well and glad to hear you are on your way to your cure!!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
Dr. Harrison is my doctor and Beth Israel, and is the best around. I'm going to see him on Monday for a follow-up. Good luck with the rest of treatments.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Aug 2012
Posts: 56
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Aug 2012
Posts: 56
AM glad you are finally in treatment. Your ENT should have gotten the biopsy report to you much more quickly--something went wrong there, suggests that he/she may not be someone you can rely on (but I do not have all the details I am sure). Fortunately it may well not have a negative impact on the ultimate outcome, as if your diagnosis is SCC BOT, HPV+, the prognosis is generally thought to be quite positive and the likelihood of there having been any further metastases during the delay is low compared to other cancers.

You are getting a fair amount of cisplatin, and it caries significant risks. You may be getting lower, weekly dosages instead of larger, less frequent doses. If you have not already discussed the risks of the various strategies for using cisplatin I would encourage you to bring this up to your oncologist very soon, as there is the potential for irreversible side effects such as numbness/tingling in extremities or high frequency hearing loss.

Good luck to you. Treatment is a bit*h and will likely beat you up, but we come back with time, and it sure beats cancer.


Ed H, NE Ohio
SCC BOT with lymph node involvement, HPV+, diagnosed 7/12
Radiation and Cisplatin
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