| | Joined: Dec 2012 Posts: 3 Member | OP  Member
Joined: Dec 2012 Posts: 3 | New patient. About to start treatment this week wed. IMRT then Cisplatin next tues. PEG this thurs. so after 3RTs and PEG placement on thurs can I or will I be up for golf on Sat?
PJD
SCC HPV 16
T3 N0 M0
Back of throat & BOT
Tx 33 RT + 2 rounds of Cisplatin
1st RT 12/12/12
1st Chemo 12/18/12
PEG
Tx @ U of Miami Sylvester Cancer Center Dr. Samuels (rad onc) & Dr. Fernandez (med onc)
2nd opinion was at Memorial Sloan Kettering NYC, Drs Patel (surgeon) & Dr. Lee (rad onc)
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | All depends....
Hopefully, your being treated at a Cancer Center.
Best Wishes,
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | also depends on how mad a golfer you are  My sense being an extremely poor albeit enthusiastic ex-golfer, is that the PEG is likely to give you a hard time and interfere with your swing. Your abdomen will be sore for a while and I imagine your healthcare professionals will advise against it??? Radiation wise, its early and you might well get away with it.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED Still underweight
| | | | | Joined: Dec 2012 Posts: 3 Member | | OP Member
Joined: Dec 2012 Posts: 3 | Being treated at U. of Miami Sylvester Cancer Center
PJD
SCC HPV 16
T3 N0 M0
Back of throat & BOT
Tx 33 RT + 2 rounds of Cisplatin
1st RT 12/12/12
1st Chemo 12/18/12
PEG
Tx @ U of Miami Sylvester Cancer Center Dr. Samuels (rad onc) & Dr. Fernandez (med onc)
2nd opinion was at Memorial Sloan Kettering NYC, Drs Patel (surgeon) & Dr. Lee (rad onc)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! The golf game will probably need to carry on without you for a while. Im an experienced feeding tube user and know that after you have this put in your abdomen will be sore. I cant imagine trying to swing a golf club while having a feeding tube. Plus when you have the tube, you should not carry anything heavy like the clubs.
In a few months you will be able to get back in the game. Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | You may not feel the effects of radiation just yet, but some do experience anxiety, tiredness even after the first day, and I agree with the above, that you still may be sore from the peg placement, and twisting, bending, lifting may not be advised.
Good luck with your treatments.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | PJD Why not ask your docs since you will be seeing them this week? The PEG will hurt whether or not you play golf and you can just open a box of press and seal and wrap it twice around your entire chest, then tape it over the dangling PEG tube to hold everything in place. (what I used to do when swimming before I got the neat little button). But be very sure not to just go out and swing that club without being very very sure the peg is tightly fastened to you or you will pull that sucker right out. It does not take much at all to put the balloon retainer out, just a strong tug. As usual, being contrarian.  Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | But honest Charm!!! It really doesn't take much!
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Well, I don't know anything about golf or PEGs but PJD, I love your spirit. Best of luck in your treatment!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2012 Posts: 3 Member | | OP Member
Joined: Dec 2012 Posts: 3 | Thanks everyone. Looks like I will go " in patient" for chemo on Sat so celebrity scramble on Sat is off the table. Didn't thnk I could pull it off anyway.
PJD
SCC HPV 16
T3 N0 M0
Back of throat & BOT
Tx 33 RT + 2 rounds of Cisplatin
1st RT 12/12/12
1st Chemo 12/18/12
PEG
Tx @ U of Miami Sylvester Cancer Center Dr. Samuels (rad onc) & Dr. Fernandez (med onc)
2nd opinion was at Memorial Sloan Kettering NYC, Drs Patel (surgeon) & Dr. Lee (rad onc)
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