| | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Kerri Are you trying to out macho me again?  You just have to beat me in recovery, don't you? Seriously, you can take your time because I am whipped. Thank you for your post, where I can finally say without getting deluged by criticism: Listen to your husband ! I am so glad you are out of the hospital. Each time the recovery takes longer I have found out. Each time the recovery is harder. But each time, we can and do recover. Everyone is cheering you on here. You have been an inspiration to me with your courage, your struggles yet never giving in to despair or drowning in pity. I keep telling myself if a young mother like you deals with this so graciously, shame on me for some of my thoughts. Don't worry about not feeling like getting on the computer, everybody understands. Take care of yourself Charm
Last edited by Charm2017; 11-10-2012 08:03 AM. Reason: typos
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Apr 2012 Posts: 111 "OCF across the pond" Senior Member (100+ posts) | | "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2012 Posts: 111 | Hi Kerri, great to see you back posting. But don't feel you need to spend too much time online, it can be very tiring. I really the worst is behind you now. Sally
Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
| | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | Thanks for all of the great messages, but I must have some of you fooled because I feel as though this has been me at my weakest, full of self pity and loss of fortitude. I know I could not do this without Dan and my amazing support system, including all of you. With this, I say a humble "thank you".
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Charm, Kerri...you guys are my heroes seriously. I draw strength from you both everyday.
I constantly think about my struggles that try to overwhelm me, and then I read a post or see a picture of either of you and think...no I don't have real problems right now, so I can deal with whatever I have in front of me.
keep fighting the good fight guys, Love you both.
Last edited by EricS; 11-11-2012 12:04 AM. Reason: always spelling
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 |
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | So glad to see updates on how you are doing, Kerri. What a great guy Dan is for being such a good support and giving you good reminders! Be sure and get the rest you need. Don't worry about "self pity" - What it really is, is "compassion" - and it's ok to have a little compassion for yourself for you've been through some tough times. Be good to yourself, get the rest you need and the fortitude will come. If you have the choice to post or to rest - I hope you rest.  We will all be around thinking about you and sending you positive recovery vibes.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | So good to see Kerri and charm posting....my heros!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hugs hugs hugs..l you got through it. You are stronger than you know!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | Kerri,
Glad to see you back with us and got through it all. You have a great husband and caregiver.
Hope to see you on here more in the coming days.
Happy you are on the way to recovery.
Take care...((Hugs))
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Nov 2012 Posts: 2 Member | | Member
Joined: Nov 2012 Posts: 2 | Hi all,
I'm Kerri's husband. Kerri finished her radiation/chemotherapy treatments on 10/31, and stayed in the hospital an extra week to ensure that she got the hydration/nutrition she needed. She came home on November 7 and has been taking IV fluids through her chemotherapy port to stay hydrated, along with feedings through the PEG. She was progressing very well, but at a followup visit on November 14 the doctors didn't like how her chemo port looked, and were concerned it might be infected. She had a procedure to have it removed the same day, and is now in the hospital under observation while they grow cultures to determine if it was infected or not, and which antibiotics to give if it is. She will probably be in the hospital for a week or so.
Other than the possible infection Kerri is doing well, just very frustrated at the setback. I think she has been progressing very well considering what she has been through. I know she appreciates all the support and kind wishes from everyone here, even if she is not able to respond to them all the time. Thank you everyone.
I will try to post updates when I can.
-Dan
Kerri's caregiver
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