| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | The last 2012 Awareness walks are fast approaching! October 20th - Seattle, WA October 27th - Minneapolis, MN November 3rd - Camanche, Iowa Here is the link tothe events site: http://www.oralcancer-screening.org...hresult&r=0&e=1356998400&t=2Please come and support these events if you are in the area!! It means a great deal when OCF members attend! Eric Statler will be speaking at the Seattle Walk, and Christine Brader will be speaking at the Minnesota Walk. Ron Baker will be attending the Camanche walk! Thank you!
Last edited by Susan Lauria; 10-11-2012 03:05 PM.
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Anyone who is an oral cancer survivor gets to attend the OCF walks for free. Even though they are free, many survivors will make a donor drive page to fund raise for OCF. Every little bit helps!
If you live within driving distance PLEASE consider taking a few hours out of your busy life to attend a walk. Meeting other survivors is a memorable experience, its like you are meeting old friends. You cant imagine what a great feeling it is to be among other survivors and caregivers. We all bond instantly since we all 'get it'.
Anyone who is able to attend the St Paul walk, please send me a PM so I can be sure to look for you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2012 Posts: 143 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2012 Posts: 143 | I am hoping you have walks in the Washington DC area or nearby states. God bless and more power to OCF!!
Joyce March 1940 to January 2014
A wife, a mother, grandmother and great grandmother.
She fought oral cancer from late 2009 to Early 2014.
2 Timothy 4:7 I have fought the good fight, I have finished the race, I have kept the faith.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Ina,
I hope we can soon. Please keep checking our events site, you never know!! We do have one in Baltimore every year, usually in April, do not have a date yet, but hopefully in the next few months, more 2013 walks will be posted.
Best,
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | OCF Walk in San Antonio, April 13th. Start making plans now to attend, I'd love to meet more of you guys!!!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | The 5th Annual OC Awareness Walk in Lehigh Valley/Bethlehem, PA is tentatively scheduled for Saturday, 9/28/2013. Please mark your calendar if you live in PA, New Jersey, etc. � we would love to see you there!
As Christine stated, �If you live within driving distance PLEASE consider taking a few hours out of your busy life to attend a walk. Meeting other survivors is a memorable experience, its like you are meeting old friends. You cant imagine what a great feeling it is to be among other survivors and caregivers. We all bond instantly since we all 'get it'.� There is such a bond between survivors that we had a few that drove over 2 hours each way to attend this years walk.
The Lehigh Valley walk is organized by local OC survivors and their friends and family. We have since form our own informal support group and welcome others to help with the walk. Some members of our planning committee are long term survivors -- 10+ years. We have two 14 year survivors and our "senior" member is an 18 year survivor and all are doing wonderful! It has been an awesome experience working with this group. When we had our first walk in 2009, I was only a 4 year survivor, so working with this great group of long-term survivors really gave me hope and the mental boost I needed.
So if you want to help, please let me know.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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