| | Joined: Apr 2012 Posts: 9 Member | OP  Member
Joined: Apr 2012 Posts: 9 | David, I'm seeing him next Tuesday(Oct 2) morning.
Last edited by ananthd; 09-28-2012 02:27 PM.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Book your ct ASAP if you can - you can always cancel it if he deems it unnecessary.  hope its nothing.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Hi Ananth, while I am hoping that it turns out to be negative, I do suggest to move very fast on this. It really does not matter if the doctor ordered PET/CT or CT as should there be any thing suspicious, conclusions can be only drawn by a biopsy.
Regarding the report:
Your tongue came out to be all clear!
Are the affected lymph nodes on the same side of neck as your were operated (for tongue)?
When did you have the last CT and were there any observations about any lymph node?
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Apr 2012 Posts: 9 Member | | OP Member
Joined: Apr 2012 Posts: 9 | Hi Eshwar, thanks. I've never had a CT before this one.
3 nodes were noted in the report, 2 on the left(10x5mm, 10x6 mm) & one on the right side(13 x 5 mm). My lesion is on the right. Strangely it seems to have shrunk a bit(I could be imagining things).
By biopsy, you also mean biopsying the 3 nodes as well as the lesion right? It's a little frustrating that I can't talk to the Doctor right now, but I'll move as quickly as I can.
Last edited by ananthd; 09-29-2012 11:40 AM.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi again. Okay - you should definitely be scheduled for a biopsy. Nodes and lung -that's he only way to know for sure if you're not at a ccc get to one. I'm sure your dr. Is fine but tere is a standard protocol for this type of cancer, and oral cancer (non HPV) can be aggressive. Everyday you wait for your dr. To get back from vacation is a day you could be getting things done in terms of appointments etc.. Truthfully it's a moot point now (your appointment is soon), but looking back at your history, it could very well be a recurrence (sorry don't want to freak you out - but the best way to catch this sucker is a the starting gate with both barrels blazing - surgery - rads and chemo.) the fact that you didn't have this tells me that they may not have gotten it all despite clear margins - cancer is cellular - there could be microscopic bits floating around that remain inactive or slow growing, post surgery. I've said his a few times on here - quoting an oncologist - there is no such thing as a recurrence - it means they didn't get it all. Particularly this soon out of treatment. (surgery) sometimes. Cancer may pop up a few years out often then it's a question of whether its a second primary. Anyway, push for them to move quickly on this. I too had a Long history of inflammation - leukoplakia - when I got this dx my specialist threw the proverbial book at me. No guarantees of no recurrence but at least I can say I did what I could. Hugs - fingers crossed too...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Hopefully it's not a recurrence, and something else minor. It could be reminiscent cancer, missed last time. I know for scc, at least in the lymph nodes after surgery, if cancer come back, it usually does at the surgical line, and did twice in my case, but I forget why that happens. You are still in a good position for cure, being you only had prior excisional surgery, , and all your options seem open. If you had prior therapy, surgey, radiation, chemo, and even lymph node invlolvemnt, that changes prognosis, but these days more is being done with accurate radiation, reirridation, radiossenting drugs, and surgical techniques. I'm not familiar with tongue Cancat, as I am my own, but similar in ceryain aspects. Chemo and radiation may be considered if it is a recurrence due the possibility of microscopic cancer is missed and lymoh node involvemnt. As mentioned, get your tests done first, and good you caught it early. Best of luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Apr 2012 Posts: 9 Member | | OP Member
Joined: Apr 2012 Posts: 9 | I met with my surgeon and am less anxious than before. He feels the nodes don't have to be biopsied(their size, shape other characteristics & my physical) don't warrant that according to him.
My lesion is going to be excised completely on Oct 15th. Surgeon thinks that it is dysplasia and not cancer this time, but who knows?
My care is at UCDavis(a CCC); my ent surgeon is supposed to be very good, who sees lots of head & neck pathology. My wife is also a physician(nephrologist) at UCD.
Hoping for the best...
Last edited by ananthd; 10-04-2012 01:17 PM.
| | | | | Joined: Apr 2012 Posts: 9 Member | | OP Member
Joined: Apr 2012 Posts: 9 | All abnormal looking tissue was excised and biopsy has come back negative!
For the moment, a sigh of relief!
My life will forever be on tenterhooks, since I've had this diagnosis once, but now I'm prepared for anything, having read the inspirational stories here. Thanks all for your support and wishing the very best for everyone in their fight!
Last edited by ananthd; 10-17-2012 04:03 PM.
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Congratulations!!! Always nice to hear some good news.
Go live life to the fullest and enjoy.
Have fun,
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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