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Joined: Aug 2012
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@JAMOS...Are you experiencing bloating/gas rather than nausea? The cisplatin is usually administered with some long-lasting anti-nausea meds during the infusion along with a prescription to be filled for other anti-nausea meds to be used at home as needed. Bloating/gas is a different matter and apparently not everyone experiences it. What we found helped with bloating/gas is simethicone (CVS Pharmacy has a higher dose in their brand)...along with a dose of milk-of-magnesia. Hope you find some relief soon.
More info on simethicone here... http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000747/

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Try Boost VHC which has 560 cals in a small 8 oz can. This means you have to swallow less to get the necessary daily nutrition. Also you better drink plenty of water, like 48 ozs a day or you will end up in the ER getting fluids. Some and not nearly enough, treatment facilities administer IV fluids as a part of this Tx and a port comes in handy. I went to the ER 3 times during my Tx (all on weekends, of course) all because I didn't drink enough water. Dehydration also leads to the Big C which speaking from very painful experience is not something you want to add to your Tx concerns.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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You might want to post this as a new topic as your post is likely to be overlooked here. My doc treated me aggressively with anti-nausea for 4 days after each chemo and had almost no nausea as a result. Suggest pressing your doc for further meds until it passes. Everyone is different in terms of how side effects affect them; for most the peak nausea seems to pass within 4-5 days. Definitely call the doc and see if more can be done. Treatment is rough but we can get through this. Good luck!


Ed H, NE Ohio
SCC BOT with lymph node involvement, HPV+, diagnosed 7/12
Radiation and Cisplatin
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Watch your intake! Dehydration can cause far bigger problems while you are having chemo with your radiation. Chemo can be very hard on the kidneys. You MUST flush it out with at least 48 oz of water every single day. Dont think you can skimp one day and make it up the next, the next day never comes.

Your nutrition is what will make it easier or harder to get thru this. Every single day you must get a minimum of 2500 calories. Not sure if you have a feeding tube or not but you still need to keep swallowing every day anyway, even if it hurts.

Dont worry about bothering doctors on the weekends. They work for you. If you need fluids you can get them in the chemo lab with your doc referring you over for hydration. You will instantly feel alot better when you get a couple bags of fluids. Dehydration can make you feel awful. Dont suffer in silence, call the doc. If you feel you arent getting enough daily speak up. Tell the nurses or your doc. This is very very important!!!! You must have open communication with your medical team. In order to help you they need to know if you are struggling and whats going on with your side effects.

Dont be embarrassed to ask for help either, you arent the first and wont be the last to go thru this. Your team should be able to help get you back on track with nutrition and hydration. If your facility has a nutritionist, it may be a good idea to speak with them to help you with your diet.

As far as nausea goes, take the anti-nausea meds even if you think you are past the throwing up. Thats where I got hung up, I would think i was ok and would skip a dose then I was sick as a dog and couldnt keep anything down. If you are doing the 3 big bag method of chemo it will usually hit you 5 - 8 days after you get the dose of chemo. I am guessing that you will feel the effects of it for 4 - 6 days then you will be ok again until the next dose. Make sure to tell your team everything! They will adjust the dosage partly depending on your reaction to the chemo.

Hang in there and stick with us, we will help get you thru this.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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I read from that in a study, Carboplatin was not as effective as Cisplatin for SSCHN. There is probably another study, that shows it was just as effective.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jul 2012
Posts: 3,267
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I looked back, and only found so far, comparisons with PF induction studies with cisplatin vs carbopaton. One said cisplatin was better, and anothet said there was slight improvement with carbo. It's all fuzzy math, and didn't even bother writing the info down. These are from the 90's.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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