| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Congrats on finishing your treatments! The thick phlegm usually lasts for about 3 - 5 weeks then comes the dry mouth. While it can be irritating, its alot better than the thick gunk. Dry mouth will require you to tote along a water bottle everywhere.
Some members rent a suction machine from their local medical supply company. You will need a prescription from your doc. Keep rinsing with 16 oz warm water, 2 tsp baking soda and 2 tsp salt and or seltzer water. I didnt use the seltzer water but others here have said how good it is at cutting the thick mucous. By rinsing several times per day with the baking soda mixture, it will help stabilize the ph balance in your mouth and clean out the mucous.
Your calories are pretty good, keep up the high calories for at least the next 6 months. You probably will not gain anything for quite a while, even if you take in 3500 or more calories daily. Your body is fighting to rebuild itself which burns up calories at an amazing rate of speed. When I was recovering I would drink chocolate peanut butter milkshakes which had about 2000 calories each, some days I would drink 3 of them and also take in my 2000 calories of formula. I never gained an ounce. Try adding some extra whey protein powder to your Boost to help promote healing. Also watch your water intake and keep taking in at least 48oz daily.
Best wishes with your continued recovery!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | About a month or so post rads.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2012 Posts: 47 "OCF across the pond" Contributing Member (25+ posts) | | "OCF across the pond" Contributing Member (25+ posts)
Joined: Apr 2012 Posts: 47 | Hi Keith
In london 3 chemos and radiation daily for past 3 weeks. Cannot eat anything due to nausea or pain due to mouth ulcers I love my peg it will keep me going. I realized first time after squrting some food and painrelief in that too much too quickly is hard on the stomache.gunk in throat is beyond disgusting.
[b]Massive improvement [/b]given a Nebulizer with salt water satches improves throat gunk and mouth ulcers better than gargles and pain killers ask for one it lets you speak again.
Away to do my footnote.
stay strong. Inner Peace when will food taste good again???
Last edited by CubanKeith; 08-10-2012 09:25 PM. Reason: highlighting
21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
| | | | | Joined: Aug 2012 Posts: 56 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 56 | I am on cisplatin at the start and again at week 3. Nausea meds (same as mentioned by P above) worked very well; used prn compazine a couple times for breakthrough nausea but otherwise had none from the first chemo. More aggressive anti-nausea treatment should be discussed and should help; it helps quite a lot in most cases, though some are very sensitive to nausea. Good luck!
Ed H, NE Ohio
SCC BOT with lymph node involvement, HPV+, diagnosed 7/12
Radiation and Cisplatin
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