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Joined: Mar 2008
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I've sent Erik this list for the app of the most popular liquid drinks prescribed for PEGs and the two big OTC versions with their Calories Protein (g Fat(g) Carbohydrate (g) Water (ml) per can.
It dawned on me that it might be too NorthEast USA centric.
Please take a look at this list and post drinks or prescription nutrients that you used as a patient or caregiver. Don't worry about filling out the information on calories, etc, I can dig that up. Just the name is all I need if I am missing something used overseas or elsewhere in the USA
Prescription
Compleat
Fibersource HN
Isosource 1.5
Isosource HN
Jevity 1.0
Jevity 1.2
Jevity 1.5
Nutren 1.0
Nutren 1.0 w/Fiber
Nutren 1.5
Nutren 2.0
Osmolite 1.0
Osmolite 1.2
Osmolite 1.5

Over the Counter Nutrition drinks
Ensure High Protein
Ensure Muscle Health
Ensure Nutrition Shake
Ensure Plus
Ensure Clinical Strength
Boost
Boost Glucose Control
Boost High Protein
Boost Plus
Boost VHC

Thanks
Charm

Last edited by Charm2017; 08-02-2012 08:48 AM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
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Two-Cal with fiber is 560 calories per can and is a popular prescription formula. How about checking on the Oley Foundation's list? They have tons of formulas listed.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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"OCF Kiwi Down Under"
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Fortisip and fortisip multifibre. Seems to be the formula of choice here in NZ. Cheapest I guess. Those who can drink the formula but don't like the taste can get Ensure and Ensure plus on prescription.


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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Posts: 67
"OCF Canuck"
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OTC

Scandishake


Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation.
Leukoplakia Bx Feb 2011 - Lichen Planus.
Bx May 2011 - Hyperplasia. Same sample retested as SCC.
June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia.
T3N1M0 Stage IV.
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After realizing the canned formula for my husband was synthethic food and a lot of sugar I tried adding fresh carrot juice and other fruits and veggies along with protein shakes and yogurt. (I used a good food processor and ran things through a strainer to make sure.) He had trouble maintaining weight even with over 2500 calories so I tried adding the more healthy calories. At first I was nervous I would clog the tube but we always got everything down it just took awhile longer at times. A nurse told us Coke would take care of any clogs but my husband found a chop stick fit great to give a little more push when needed. Thank goodness the feeding tube is now a thing of the pass but was much needed then especially since he did lose over 35 pounds. He never thought he'd be back at his college day weight.


Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
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Thanks Christine. I had seen TwoCal on the Abbott site but it was not under their Cancer nutrition section. But since we want the app to cover what people drink or put down their tube, I'll add it. sounds like you have drunk it.
I'll recheck the Oley site but like the Abbott site and many nutrition articles many of the ones I left out are designed specifically for the other diseases besides Oral cancer that put patients on a feeding tube. such as Celiac Disease, Diabetes , Gastrointestinal , HIV/AIDS ,Inherited Metabolic Disorders , Kidney Disease ,Osteoporosis and Wound Care
Which is why I left them out. Depending on the response to this thread, I will definitely include more.
Thanks for taking the time to read the list and help out
Charm




65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Tamvonk

That is exactly the type of International information I was looking for. I will add them both
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Shauneen

How could I have forgotten Scandishake? Oh yeah, i remember, I hated them - they made me vomit during radiation, so I subconsciously blocked them out. But they are popular and I will add them
thanks for helping out here.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Terrib

I'm a big fan of Blenderized Diet and my Vitamix, so I agree.
I think a couple links to the BD sites/forums or at least a paragraph on the introduction/text part on BD as an alternative to the canned corn syrup will be good
Glad your husband is off the tube
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Okay OCF readers. The above posts are a GREAT start. Even if it's not on the regular lists or prescribed for something else, if you or your patient DRANK it in lieu of food, please share.
We want the list to reflect what happens in the real world not just what is marketed.
So look over the list and chime in
Together we can make this the best list ever
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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