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PaulB Offline OP
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Thanks Cheyrl. I go gor a CT scan on Monday. Surgery is scheduled for 8/20/22.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
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"OCF Canuck"
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Fingers crossed this is the end of it!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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"OCF Canuck"
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Keep us posted - fingers, toes, eyes crossed that you have now found the perfect plan for you. Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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PaulB Offline OP
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Than you Donna.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jun 2010
Posts: 38
Contributing Member (25+ posts)
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Joined: Jun 2010
Posts: 38
Hi Paul:

I am sorry to hear you have a tough surgery ahead of you, but I am happy to hear you have an option and are having a positive experience with Dr. Harrison. I, too had Dr. Jacobson with whom I also felt very confident. I agree that Dr. Harrison is a brilliant man. I had Dr. Berlach, wondering if that is the assistant you had. I was comfortable with him also. I hope the best for you.

I was blown away by the procedure you describe. I remember feeling like I was in some science fiction movie with my procedure. My Mother always says, "you gotta do what you gotta do".

I am sorry I have not been able to actively be back on the forum. We almost lost my Father 3x since July 11. He pulled through amazingly and is now in a skilled facility with a road ahead of him, but will be able to be going home after rehabilitation. smile

Please keep me posted on your progress. My prayers and positive thoughts are with you.


'08 SCC Rt tongue,part glossect.
'09 Rt neck dissect, 3 Cisplatin, 35 rad.
Aug '11 Rt tongue,hemiglosstmy, Lt neck dissect, forearm flap, 8 Erbitux,30 rad, brachy tongue.
Oct '12 SCC prev stoma site. SCC inside trachea.
Nov '12 total larengectomy, addl neck disect, pec flap
Oct '15 Myelodysplastic Syndrome (form of leukemia)

Dec 8, 2015 passed away peacefully at home surrounded by loved ones
How Cindy wants to be remembered..."I want people to realize I am no longer trapped in this body prison, and I will be free and whole. I want to be remembered by all the good and loving times spent together, not in sadness."
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PaulB Offline OP
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I'm sorry to hear abou your father, and glad he pulled through. Thanks if getting back to me, and appreciat your support, and giving the name of Dr, Harrison, otherwise, I may have went elsewhere.

I called Memorial Sloan Kettering, who I contacted before Beth Israel, and after submitting just about every single document, scan, and slide just to get an appointmrnt or a consultation, basically said, dont even bother to cone in for a consultation. I was dumb founded, , but glad I did not wait solely on them. They asked, and agreed, for them to send back my documents, which cost $400 to obtain, transmit.

Although not happy, MSK, does hsve an integrative Health center offering a variety of adjunct, alternative treatments like Reiki, aroma therapy, massage. You don't have to be a patient there, so I'll inquire tomorrow.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jun 2010
Posts: 38
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Jun 2010
Posts: 38
I had Reiki during my treatments when I was at University of Penn Hospital for outpatient radiation and Chemo prior to the brachytherapy at Beth Israel. They offered Reiki in Philly. It seems like more and more places are offering those types of alternative treatments. I liked it and it made me sleep really well at night.

Maybe they have something at Beth Israel. I was there for 8 days and since I was in isolation I never inquired.

I'm glad you found Dr. Harrison. You have another option now that you didn't have before and will know you have done everything available. My dear friend Dawn pushed me to go see Dr. Harrison and I feel I owe her my life for prodding me to see him even though the Philly doctors said they didn't think he would.



'08 SCC Rt tongue,part glossect.
'09 Rt neck dissect, 3 Cisplatin, 35 rad.
Aug '11 Rt tongue,hemiglosstmy, Lt neck dissect, forearm flap, 8 Erbitux,30 rad, brachy tongue.
Oct '12 SCC prev stoma site. SCC inside trachea.
Nov '12 total larengectomy, addl neck disect, pec flap
Oct '15 Myelodysplastic Syndrome (form of leukemia)

Dec 8, 2015 passed away peacefully at home surrounded by loved ones
How Cindy wants to be remembered..."I want people to realize I am no longer trapped in this body prison, and I will be free and whole. I want to be remembered by all the good and loving times spent together, not in sadness."
Joined: Jul 2012
Posts: 2
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Posts: 2
Hi Paul, I am also new to this... We can learn together smile I've had recurrence n it sucks... To me it's worst when they tell you the cancer is back than when they first diagnose you... Anyway, I've learned that us cancer patients need to keep a positive attitude and believe you will be ok... Have faith.. I will be praying for you...


Diagnosed 3/2010 on lower rt jaw. 1st surgery on 4/2010, recurrence in 9/2010. 2nd surg. 11/2010 mandibulectamy w trachea and bone and skin graft from Lt. Leg. Placed on remission 4/28/2011
Proud to be a Survivor! smile
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Posts: 3,267
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PaulB Offline OP
Patient Advocate (old timer, 2000 posts)
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Posts: 3,267
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Thanks Cindy. Find out the integrative treatment cost money lol. I'm not paying. Beth Israel has some integrative medicine, and will look into it, but will be out of commission after surgery also. I didn't know you were there that long? I was told for my surgery 3 days, but read in an abstract done there it range from 3-15 days. I saw Dt. Harrison, and gave me more confidence.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jul 2012
Posts: 3,267
Likes: 1
PaulB Offline OP
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
Thank you Edmar.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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