| Joined: Jul 2012 Posts: 9 Member | OP Member Joined: Jul 2012 Posts: 9 | Hi, I have been reading/lurking for a few days now. My dad was recently diagnosed with malignant SSC on his tongue that spread to his lymph nodes on the left side. He had surgery last week and surgeon was pleased that all was removed tho we won't have pathology results back until later this week.
My dad seems to be in a lot of pain - is it normal to need the pain med max dose at the time it is due? Sometimes he tries to go longer and/or he misses a dosage bc he finally was able to sleep - but its clear he is in pain and needs it.
He was doing really well the first couple days post surgery but the last two days seem to be harder.
Not sure if I am being overly worried or if this is part of the healing process - there really isn't a lot of info out there about post surgery recovery process/timing -- and I don't want to be a pest calling the dr office all the time.
Any advice/suggestions/places to find more info are most appreciated.
Thanks, Alicia | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | Hi and welcome Alicia. I haven't had that surgery but my experience with other surgeries has been that if you wait to long to take the pain meds it's just harder to keep the pain under control. Best of luck and strength to your Dad.
Last edited by Deejer47; 07-24-2012 10:10 AM.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Its perfectly normal to be in alot of pain after any major surgery. Being in pain has never once helped a patient heal. Its ok to take pain meds. A agree with David, if you try to tough it out and then try playing catch up it usually doesnt work out so well. Better to take the meds for a few days as prescribed (usually every 4 hours or so depending upon the medication). If your father has been given something mild like something just a little stronger than is available over the counter then no wonder he is hurting. Recovery from what your father went thru can take several weeks, he will gradually feel better as time goes on. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2009 Posts: 329 | AJD,
I had tongue cancer and surgery no rad or chemo. I was on Roxycodene for 2 weeks then to tylenol over the counter. The tylenol worked fine afterwards. I took the pain meds every 4 hours. The pain meds didn't put me to sleep it worked reverse, but that's me.
Your Dad should be taking the meds when prescribed it does help with the healing process.
Hope all goes well.
Take care, Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2. Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | Joined: Jul 2012 Posts: 9 Member | OP Member Joined: Jul 2012 Posts: 9 | Thanks so much! Its reassuring to hear other experiences and that this is "normal".
Alicia | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Hi, Alicia - you noted [quote]and I don't want to be a pest calling the dr office all the time. [/quote]
Actually, pest isn't quite correct - Patient Advocate is! It's ok to call with questions. Really!
Best wishes to your dad as he heals. And remember to take care of yourself, too!
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2011 Posts: 596 | All good advice here, Alicia! Best wishes for your Dad's recovery and putting this cancer to bed for good! You're doing a great job! Take care of yourself, too. Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11) SCC L oral tongue (no risk factors) L partial gloss/MND 3/28/11 @ 25 wks preg T1-2N0M0; no rads/chemo Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-) Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx. Various scans since rx ended are NED! Part of genetic study for rare cancers @ MGH. 44 years old now...I wasn't sure I would make it! Hoping for 40 more!
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