| Joined: May 2012 Posts: 3 Member | OP Member Joined: May 2012 Posts: 3 | Hi I'm Leigh, 42 female. I'm pleased to have found this site. I've spent the last 6 days crying, not eating, most worried & scared I've ever felt. I went to my GP last Weds because of a "sore" throat and ear on one side along w/ a slightly enlarged painless node. Throat & ear are not painful really but a nagging ache when I swallow saliva. Doesn't hurt swallowing food or drinks. I almost can't tell if it's my ear or throat or both....My tongue on the side in the back feels dry in one spot at night right where I feel the nagging little ache. It's very localized to me. Not like a normal sore throat more like a sore spot. I thought she'd say I had an infection but she found nothing. She looked very scared and kept asking if I ever smoked, drank heavily or been exposed to radiation. no, no and no. (I did have half my thyroid removed in 2008 on that side-thought nodules were cancerous but they were not). She gave me the name of an ENT and said she'd send my records straight over. My appt with the ENT is tomorrow. She (my internist) literally scared me half to death. I've cried every day ever sense. The last week has been like a nightmare for me. I want to go to sleep and just sleep until this is over (however, I dream and think about this even in my sleep). Every search I've made points to the C word. I'm crying as I type. Please talk me down. What should I expect tomorrow? How bad is the scope I expect? What do I ask? I've made the horrible mistake of searching the net with the symptoms and it's all bad. I'm so afraid. Please calm me down. I have no one to talk to. My husband has told me it'll be fine but he doesn't really grasp the fear that has taken me over.
Last edited by LeighTX; 05-29-2012 04:18 PM.
| | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | Leigh, As others on this site will tell you, it's not cancer until the biopsy says that it is cancer. If it is, we will go from there. This is a wonderful place to come when you need support, and we will be with you every step of the way. I am glad that you are seeing an ENT. I'm not certain what, exactly, will be done tomorrow, but you will get through it. Are you having a biopsy? If so, that is pretty simple. Just try to relax (I know-easier said than done) and hope for the best. Good luck tomorrow, and keep us posted.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | Hi Leigh, I agree with Z about the biopsy. I will say that the waiting is not over. It's usually couple days til tou learn biopsy results and the waiting is seriously stressful. Then, if (and that's a big IF) the biopsy says it's cancer, then the waiting has really just begun. Sorry, not trying to discourage you (many of us have been through this and as you can see by posts on this forum, come out of it with some lingering problems but still here) but waiting for decisions to be made on course of tx etc. can be maddening. Good luck and stay strong, crying is not a sign of weakness.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Jul 2011 Posts: 25 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jul 2011 Posts: 25 | Worry can take the starch out of you if you let it. The best I can offer is to "take charge." Just say to yourself that you are in charge of each day and take what comes with an attitude that you will "take charge" of whatever decisions have to be made. Feeling like you're in control helps but I do understand your concerns. A good ENT will have a pretty good idea what he's looking at even before the biopsy so be prepared to listen. You came to this site because of your research. Please post your results and the good people here will give you a lot of help and support - if necessary. Hang in there.
Diagnosed in March 2011. Treatment ended May 28, 2011. Back of tongue cancer with one lymph node(stage 4). Feeding tube 5 - 2011, to 9 - 2011. Some saliva and taste. Eating most foods; meat, fish and dry foods not so well. Swallowing pretty normal otherwise. Doing well now. The future? Who knows.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! I am so glad you have found this site. There are way too many places with incorrect medical info. Of course you are afraid, every single one of us was where you are and felt that fear at least once. Its the fear of the unknown. Do yourself a huge favor and take a deep breath and calm down! Being upset will NOT help you feel better at all, it will only make you feel worse. Try to stay off those other sites too, this is the very best place to go to for correct medical info. We many not be medical professionals but living thru a cancer battle has taught us things that arent in the medical textbooks.
The best way to keep yourself from worrying about the "what if's" is to keep yourself very busy. Do something that keeps your mind involved and things you need to concentrate on. Read a good book, every time you start to worry, pick it up and read. While having cancer isnt a walk in the park, it isnt the end of the world either. Hang in there and when you know what you are dealing with then get your priorities straight, make a plan and take care of it. Getting scoped is no big deal and either is having a biopsy, at least to me its just part of making sure everything is ok. Think of those things as tools that are necessary to figure out whats going on.
Good luck with your appointment! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hello everyone's advice to you has been spot on. Realistically speaking it is or it isn't cancer. Worrying will not change the Truth. Either way you should know soon. Until then don't let it steal any time from you. Hopefully it's not but if it is we're here to help and listen we've all been in your position so we do get it. Do get a biopsy to ease your mind, don't freak while waiting. It is a dx that can be life changing admittedly, but with a good treatment at a ccc it could very well end up being just a blip on the radar. Hugs... Please let us know what the dr. Says..
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Leigh,
From your description, IMO the ENT will probably stick a needle into the swollen node and withdraw some fluid (call a Fine Needle Aspriation (FNA)) and send it off to be closely examined at the cellular level to determine if any of the cells are canerous.
If the ENT does do a FNA the results can take at least a week to come back.
Easy to say but impossible to do but try not to worry.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2012 Posts: 3 Member | OP Member Joined: May 2012 Posts: 3 | Hi, I just got back from my ENT appt. He scoped me and stuck his fingers down my throat (apparently my gag reflex isn't bad). He felt my neck and looked with a light. He said he absolutely saw nothing. I told him whatever he sees he can snip it today. I don't need pain numbing or anything. I'm just so ready to get this figured out. He insisted there was nothing there at all. He said there's nothing to biopsy. I am being scheduled for a CAT scan. He threw out Eagle's syndrome based on the description I gave him. He said the node didn't look enlarged to him but moved to the side a bit. My heartbeat is very prominent in that node. He said he feels like something is pushing it and my carotid artery to the side. He said he should be able to feel a mass (I'm very thin with a bony neck) He tried to calm me and said a cat scan will clearly show Eagle's if that's what it is. The bone pressing on the nerve will be enlarged. If there's a mass, it will show that too. If it doesn't, we'll go to the next step/test. He said we'll press on until we find out what's going on. I'm a little calmer but only by a fraction until I get past the rest of these tests. I have to prep for the scan for 48 hrs prior (contrast allergy) so hopefully the scan will get done next week. He promised he'd get it set up quick because my anxiety is unhealthy. Anyway, waiting is the hardest part. Everyone in this forum is so brave. I hope I can be too.
Thank you all so much for responding. This is the only place I can vent about this. It does help. I'll keep you updated. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | It sounds like your exam was very thorough. Your doc sounds like he is on the ball and will continue to try to find out whats going on with you. Do yourself a big favor and keep busy until you get the test results. Staying busy will help pass the time and distract you so you dont worry so much.
Best wishes!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | That's great... hopefully your anxiety has gone down a bit!... try not to worry - if he isn't you shouldn't be -- hopefully it's nothing or something minor and he'll get to the bottom of it... Just remember to push if you have to.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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