| | Joined: May 2012 Posts: 1 Member | OP  Member
Joined: May 2012 Posts: 1 | To introduce myself I am a 50 yo male who right at a year ago started this journey to defeat stage 4 SCC. My chemo and radiation treatments ended in mid November and a PET Scan in Feb came back "no signs of cancer". I have many questions, even more opinions (never been accused of being short on opinions) but sadly no answers since I am not a healthcare professional. I would love to hear from anyone who would like to help or needs help. Through all of this I found great comfort in talking with others. Hopefully I can be of help to many of you as well.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Congrats on your one year anniversary! Its always nice to have another survivor join the forum. One of the best things about this forum is connecting oral cancer patients and survivors to each other. When we get together in person at events, its like we have known each other forever.
You will find alot of info here which is very useful. Survivors and caregivers learn quit a bit about this horrible disease. Please feel free to ask any questions you may have. Even though you are one year post rads, you still will make progress with your recovery. It can take 2 years for a full recovery. Im sure your experiences will be useful to other patients.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | I like to guess poster's screen name inspiration. I'm going with you are the number one fan of your local soccer team, .
Sporting Kansas City .
Welcome to the board. Since you had base of tongue cancer, it's great that you got an all clear PETscan since they usually have 50% or higher false positive rates for BOT cancer. Pretty good sign of remission.
Since the magic 5 year clock starts running at last TX, it will be November 2016 before the SEER statistics count you as a survivor, but but here at OCF we know the odds are always 100% or 0% for individuals, so we use the National Cancer Institute's definition
[quote]Cancer Survivor: An individual is considered a cancer survivor from the time of cancer diagnosis, through the balance of his or her life.[/quote]
Congratulations on your one year anniversary as a survivor!
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Congrats to you and welcome. I always enjoy reading Charm's posts and today he's especially inspirational. So welcome to survivorship!
Although I respectfully disagree with him (Charm) on the screen name meaning. Obviously you're a fan of St. Kevin's College in Melbourne.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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