| Joined: Apr 2012 Posts: 13 "OCF Canuck" Member | OP "OCF Canuck" Member Joined: Apr 2012 Posts: 13 | thx David
CG to Mike, diagnosed SSC base of tongue March 6/12, T2N2, Stage 4, 35 rads, 3 cisplatin, hospitalized end of treatment TPN nutrition lost 50lbs. lymph nodes in neck necrotic tissue Jan /13, radical neck dissection March 20 positive SCC could not remove all
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hey! Cool... I'm in TO - PMH - so glad things are getting a bit better!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2012 Posts: 13 "OCF Canuck" Member | OP "OCF Canuck" Member Joined: Apr 2012 Posts: 13 | Well, zofiran ODT are working well, so well they attempted an NG tube. He's tolerating it for flushing and meds, the pump is being delivered tonight and we will start feeding then... I'm encouraged.. he's not so much, more tubes sticking out of him. But at least he can get nutrition. Thanks for all the help. I will keep in touch with how things go from here.
Josee
CG to Mike, diagnosed SSC base of tongue March 6/12, T2N2, Stage 4, 35 rads, 3 cisplatin, hospitalized end of treatment TPN nutrition lost 50lbs. lymph nodes in neck necrotic tissue Jan /13, radical neck dissection March 20 positive SCC could not remove all
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Once the nutrition is where it should be he will feel so much better! Glad it is working out. Dont forget you can always get hydrated at the hospital if you feel he is not getting enough water. Daily minimum is 48 oz of water and 2500 calories, more is even better. This will make a huge difference in how he does with treatments.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2011 Posts: 596 | Hi, Josee.
I had a home suction unit that helped tremendously. There are lots of people who have "been there, done that" and they have lots first-hand experience to share. You husband is fortunate to have a person such as yourself taking care of him. Please remember to take care of yourself, too.
Hugs to you, Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11) SCC L oral tongue (no risk factors) L partial gloss/MND 3/28/11 @ 25 wks preg T1-2N0M0; no rads/chemo Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-) Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx. Various scans since rx ended are NED! Part of genetic study for rare cancers @ MGH. 44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | Joined: Apr 2012 Posts: 32 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Apr 2012 Posts: 32 | Hi Josee, I am pretty much a newbie also. I was diagnosed with SCC in the tonsil end of Mar 12. Had the tonsils removed. SCC metastasized to the L lymph nodes (PET had a light show). MY cancer center the Walter Reed National Military Medical Center will provide my treatment to beat cancer. I had 4 morals removed yesterday. I get my PEG next Tuesday. I get my mask fitted and do a rad simulation next Monday. I get a port installed on 10 May. I start rad/chemo 21 May.
I agreed with my team of providers I will need a PEG. For me hopefully it will be a back-up. I had some difficulties post-op and bled, a lot. Two times went back to ER. Last time was a charm. Dr. cauterized the bleeder but those two weeks were a noted challenge to eat or drink. Eating and drinking is required to live, so for me deciding to install a PEG was easy. I will muscle down whatever I can thru the mouth, but if I cannot, I got my backup already to go.
Most of my Dr's said the issues come up when a patient thinks they will be able to eat/drink but don't or cannot (but don't have the PEG already). I'm just preparing for the worst.
As I mentioned, I'm new to this, but a PEG might make thinks more tolerable.
Sincerely,
Ken
48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr 1 mo sore throat w/neck lump 3/12 SCC tonsil, lym nodes 4/12/12 rad tonslctmy, mets in lymph nodes 5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer BSA Scout Ldr w/strng desire to live & beat cancer
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