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#147709 04-02-2012 06:14 PM
Joined: Jan 2012
Posts: 112
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Jan 2012
Posts: 112
Hi guys, It�s been a while that I don�t post here. I�m doing fine, eating normally and talking as I can. Not as before but people understands me. I talk as a "country girl" as we talk in Brazil.

Well, I have a question for the only reason that�s bothering me. I know it can be worse, but I want to talk about it.

I didn�t had any flaps or reconstruction. My doctor made what he call primary closure, which means that my tongue were closed with my own tongue.

My lesion was small 0.5 X 0.7 X 0.63 depth. However I lost 2 X 3cm of my tongue, wich means it�s shorter now.

My issue is that I can pass my tongue through my teeth or through my whole oral cavity. It�s making me crazy! frown

This happen to you too? Do you have this sensation? It�s kinda claustrophobic! frown


December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
I can run my tongue through most of my mouth and do have sensation - they did rebuild my tongue... I think eventually you will get used to it though. Good luck.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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