| |
| | Joined: Sep 2011 Posts: 61 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2011 Posts: 61 | I am definitely going to ask my doc these questions when I see him in April but wanted to know if anyone here had any experience.
I had about 1/3 of my right tongue removed and replaced with tissue from my left wrist. This was done at the end of June 2011. Does anyone have any sensation in the "new" part of your tongue? I swear I can feel a tingling sensation occasionally.
Does anyone have issues with burning(like with hot food) the new part of the tongue easily?
Does the new part of your tongue start to look like the rest of your tongue? The skin from my wrist is obviously a different color from my tongue. When I look at the new part it does look like part of my old tongue is creeping over to the new side along the edges. I don't know how else to describe it but it looks like it is changing color to match the rest of my tongue.
Do not go gentle into that good night. Rage, rage against the dying of the light.
31 @ Dx SCC of tongue right side May 27, 2011, no tobacco, light drink
Partial gloss. and ND June 2011 - 2 jaw nodes positive ("encapsulated")
33 rads ended 10/21/11.
Dx Non small cell lung cancer 05/18/15
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yes I can feel it if I bite it (like a bee sting) and now I can feel temperature as well. Mine was done last feb. It actually Is a little more sensitive to temp than my regular tongue and just a little paler. If you check my Facebook page (friend me) under Frankenstein (photos) I have a picture of my tongue.  take care
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2006 Posts: 21 Member | | Member
Joined: Dec 2006 Posts: 21 | I just passed my 5 year mark a couple of weeks ago and yes, my "new" tongue is VERY sensitive to burning, even 5 years after surgery. I eat most of my food cold because I am always afraid of the burn. I used to experience the tingling quite frequently but not so much anymore.
My "new" tongue is still paler than the real one. That has never changed.
Tongue cancer diagnosed 12/01. Tumor removed. No chemo, no radiation. Early stage 3 SCC of the tongue recurrance 12/06, well differentiated. Hemiglossectomy, free flap, neck dissection 3/26/07. IMRT Tx finished 8-7-07(30 Tx's). No chemo.
| | |
| Forums23 Topics18,170 Posts196,930 Members13,105 | | Most Online458
Jan 16th, 2020 | | |
|
| |
