| | Joined: Dec 2011 Posts: 9 Member | OP  Member
Joined: Dec 2011 Posts: 9 | I want to thank all that have contributed to the board. I have only posted a couple times but have read pretty much every post on the board to help cope with my Mother's Oral Cancer, being primary caregiver to her.
Sad to say my mother passed away last week after about a week in Hospice. My sister and I were with her for the last two weeks of her life and helped care for her in Hospice. I am not sure if it would be of any help on this board to post exactly what happened and how we helped care for her during this time. Please let me know.
Thank you and God Bless you all.
Caregiver to mother (76) smoker, drinker
7-15-11 diagnosed Stage 2 Tonsillar Cancer - No lymph node involvement
PEG and Port installed, Radiation and Chemo begun
11/3 Treatment complete
12-15 CT lower right jaw half gone and possible lymph node involvement
Thank God for my husbands help and support
| | | | | Joined: Jan 2012 Posts: 112 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2012 Posts: 112 |
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | jazcat,
I am sorry to hear of your mother's passing, but glad that you and your sister were there together with her. It is a blessing to her that she had her dear daughters with her, and a blessing to you to have the courage to be there and to help.
I don't know how to answer your question, so I will leave to others.
May you find peace and begin to remember the happier times soon.
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im very sorry for your loss. I remember your first post. May your mother now rest in peace free from any discomfort.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2011 Posts: 9 Member | | OP Member
Joined: Dec 2011 Posts: 9 |
Caregiver to mother (76) smoker, drinker
7-15-11 diagnosed Stage 2 Tonsillar Cancer - No lymph node involvement
PEG and Port installed, Radiation and Chemo begun
11/3 Treatment complete
12-15 CT lower right jaw half gone and possible lymph node involvement
Thank God for my husbands help and support
| | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | God bless you for the care you gave your mother. So sorry for your loss.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | I am sorry for your loss. I pray that it was a comfort to have your sister and to spend time with your mom through the end.
As for sharing the experience, I can't speak for others, but I am always looking for info on what to expect.
When I post, I'm usually not very filtered, and I encourage the same honesty in you should you feel it would help others.
Bless you for thinking of others during this time.
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | I'm so sorry to hear of your Mother's passing. I'm sure it was a great comfort to her to have you and your sister with her, sharing some very special and tender moments together. Anything that you would like to share could help someone else in being able to accept what is ahead for them. It's been two years since I lost a dear friend thru cancer. I was visiting her almost every day during the last few weeks and I will always treasure the time we had. I am comforted now in remembering the happy moments as well as the soothing tears we shed in sharing this last journey with her. So just write whatever you or your sister have experienced and are feeling. It will help you and could help others, too.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi Jazkat:
I just saw this, and wanted to say how sorry I am about your mother's passing. I it's hard on you and the family, but the thought that she's at peace and free from disease and pain, will be a comfort. May your memories of her give you strength and comfort.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | |
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