| | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | PET and CT were yesterday, we get results later today.
We got a good impression of the doc when we met her last week, but she didn't know what to do next really, and said that it seems the previous team threw everything medically available at the cancer already.
We have watched documentaries of the Gerson therapy and natural cures, which seem to be the core of CTCA programs. That may be all that Matt has left to try.
I haven't slept much in the past few days. Speculation of what might be coming today is enough to make me crazy (er)....
Neither of us are ready for the news we fear will come.
I know... positive thinking, etc. I am grateful that this forum is here.
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | No clinical trials? Someone here is looking into personalized chemo, they require a fresh biopsy sampl an a an checks it to see specifically what it responds to... Check the post about personalized care. Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I cant even begin to image what you and your husband are going thru. It must be pure torture waiting to hear the results. Try your best to keep busy to help pass the time. I will keep you both in my prayers.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | So good to hear from you Christine and prayers going to you and your hubby! Hope to hear good things.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 | The personalized chemo testing nut 'tis me. Initially my Dad's MO, as well as every MO we've spoken with, dismissed this type of testing as unnecessary, not proven, etc. You do NEED your MO to at least consider the findings of this type of testing, and we were pleasantly surprised to learn that he changed his mind and his tumor sample is being reviewed as of now. In reality, we do not anticipate a miracle and suspect the results will recommend similar Rx to what's on his agenda now. But I HAD TO LOOK FURTHER. My Dad's mets sound similar to Matts. He is currently on this trial http://clinicaltrials.gov/ct2/show/NCT01044433 and as of now his mets have shrunk. To be clear, his MO is pleased but all MOs still confirm this is palliative care.
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
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