| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | OP  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | http://www.myfoxtampabay.com/dpp/he...6-million-americans-report-says-01262012Play the video. Those are Buddy (black) and Lamont. Now 4 years old recused puppys.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Great job David!!!! I liked how they talked about the vaccine and said boys are now also being vaccinated. Wish they had discussed the vaccines more. I didnt like how the woman in the lab coat said HPV is found in men in their 30s and 60s. It made it seem that those ages were the only ones at risk. We all know that there are many in their 20's getting HPV caused oral cancer. We have seen all ages come thru the forum with OC caused by HPV.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Actually the report showed that 2 age groups of men had more incidence of Oral HPV than others and that was the 30-35 and 60-64. That's where she got that. Also even though I spent a great deal of time telling her about all OFC has done to get vaccine word out she barely mentioned it even saying "the results are not in but they look promising"....give me a break...
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | At least HPV is getting mentioned more so that is also bringing more attention to OC. Darn media can take hours of filming and edit it into 2 minutes of what they think is correct. Overall it was pretty good!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Nicely done, David. Great that your local stations are even taking an interest in this. I don't watch local news so can't tell you whether any covered it. There was a front page below the fold article yesterday in the LA Times which essentially outlined the same material from the original news release. And since this is LA they of course led with oral sex. Think your newspaper's treatment was more nuanced.
And of course I loved the dogs.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2011 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2011 Posts: 33 | Darn Right people! This is a potential CANCER VACCINE. You know that if there were a vaccine to prevent breast or prostate cancer (just two common cancers that come to mind in no particular order) it would be on every news program in the country.
2006 SCC T0 N1 M0; 2006 EBRT x 33, chemo x 3; 2010 Extraction 2 molars; 2010 HBOx30; 2011 Dx osteosarcoma of mandible; 12/20/11 mandibulectomy with temp. titanium plate; 1/31/2012 chemo x 4; 9/19/2012 Reconstruction of mandible with graft from hip and bone morphogenic protein
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