| Joined: Jan 2012 Posts: 3 Member | OP Member Joined: Jan 2012 Posts: 3 | MY QUESTION IS HAS ANYONE EXPERIENCED BITING OF THEIR TONGUE? I HAVE UPPER DENTURES FOR 1 YEAR NOW AND TWICE I HAVE BITTEN MY TONGUE. THE LAST WAS CHRISTMAS I BIT RIGHT THRU MY TONGUE. I WENT HOME AND TOOK A PAIN KILLER AND DIDN'T KNOW WHAT ELSE TO DO.
THANKS FOR ANY SUGGESTIONS. IRENEMARIE | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | HI IRENE!! I'M NOT YELLING MY CAP LOCK IS ON BUT I AM EXCITED YOU FOUND THESE FORUMS!!!! Seriously my dear welcome to OCF, glad you found us sorry you had to! Right after my mandiblectomy half of my face was paralyzed and scar tissue anchored my tongue to the floor of my mouth. 18 months later I had a C7-12 nerve graft and during the operation they clipped the scar tissue anchoring my tongue to allow a better range of movement. When they did that I started having the issue of biting my tongue as I wasn't used to having the range of motion and I lacked feeling in parts of my mouth due to nerve damage. I've been able to overcome that by working with a speech pathologist and I recommend that course of action. My SLP has been wonderful at not only helping me with the tongue biting issue but also in allowing me to overcome a severe speech impediment due to partial facial and tongue paralysis. I hope that helps my dear! HAVE A GREAT DAY! Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Jan 2012 Posts: 3 Member | OP Member Joined: Jan 2012 Posts: 3 | Thank you Eric,
I had cancer twice on my tongue. The first time they took lymph nodes on the left side of my neck three layers deep. the SECOND SURGERY WAS ABOUT SEVEN YEARS LATER. sAME SIDE OF THE TONGUE (LEFT) AND THEY TOOK HALF THE TONGUE AND SEWED THE REST TO THE FLOOR OF MY MOUTH. I can talk and most people understand me and I can eat. But now I am so scared of eating anything with the dentues in. I went to the dentist and he relined the dentures but its but working so I wil see him next week.
IreneMarie | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | They call my teeth "company teeth" as I never wear the denture with attached prosthesis unless I am going out or - God Forbid- have to talk on the phone. My family is used to me removing my denture before eating. With the prothesis filling the roof of my mouth with acrylic, there is no room to put foot in between it and my immobile tongue, so to eat, I just take them out. They don't even notice anymore. Amazing what you can get used to!!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF IreneMarie! Sorry to hear about your tongue problems. I dont have any teeth at all so I am not familiar with your situation. Try eating slowly and paying very close attention to what you are doing. When I eat, I have to concentrate on what Im doing so I dont choke. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi there - welcome Irene - I too had a partial glossectomy - maybe a third of my tongue removed, however they rebuilt it but did not attach it to the floor I my mouth so I have full mobility, and yes occasionally the thing gets in the way of my teeth. I do have some feeling in the new side and can feel when the teeth come in contact with it do I stop myself before I do damage. They did no remove any of my teeth so I can't take them out I just have to be super careful hen I eat! Take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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