| | Joined: Dec 2010 Posts: 99 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Dec 2010 Posts: 99 | Hi all
Well I just put Emmett back on the train home and all went almost perfect with his checkup this time. No visual signs of a reoccurance. He also had his peg removed after 14 months! He is one happy man even though it is tough to eat all the foods needed to maintain his weight he adds ensure and etc. to his day. He has found that within a couple weeks of trying he can eat faster and more types of food than he originally thought. So all is good, well almost. His platlets are still very low, 68 (he bruises and bleeds easily) which is not normal , they usually recover within 39 days of treatment so they will be taking blood samples over the next months and if they don't improve will do a bone marrow test in March at our next visit. There is a condition that does happen as a result of chemo. which I wrote down and will research related to low platlets. I asked if it could mean he has developed Lekemia but the Dr. said very unlikely, I think he said counts would be high if he had that. That was a relief. Just hope the numbers go up. Seems like it is always something!! I am still at Mayo with my niece until after Christmas, she is responding well to treatment but it is very rough for her right now (stage 4 cervical) so I am at Hope Lodge once again. Our second missed Christmas - next year will be better!
CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | What a good Auntie you are! In medieval times, 12th Night (after Christmas) was the time for the real celebration - it sounds like you and Emmett will be able to have one of your own. Best wishes for a blessed Christmas with your dear niece.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Karen, I'm so glad to read about Emmett. It must be wonderful for him to be free of the PEG and looking forward to getting back to a regular diet.
I'll keep good thoughts for your niece and glad that she's responding to treatment and that you're able to be with her.
All my best to all of you.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | | "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 |
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
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