| | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | OP  "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | I had check up today and the surgeon went in to detail about having reconstructive surgery. It's very involved! Taking skin and muscle from my back and a rib connecting it to a vein in my neck and then having a 10 hour op which may leave me with multiple side affects! But I have a year before this can be done so my immediate response was I'll think about it then!
Question for any ob wearers have you flown? My doc said he thought it was not a good idea and he didn't know if it would be alright or be in complete agony due to the air pressure. Has anyone had any problems when flying?
Been a long day also had hearing test which showed a loss and need a hearing aid too! And I missed my works Xmas dinner as I got stuck in London traffic! Wot a day :0
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Sounds like you did have a sucky day!!! Sorry! Hugs! A hearing aid? Wow from the cisplatin? Hugs again!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Kevin's hearing is pretty bad too now. He had cistplatin too. Guess we better get it checked closer.
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Sep 2009 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 126 | I have flown once since treatment and do not recall any problems. I am now over two years with the obturator, although it has it draw backs, you eventually adjust to some of the "new normal". It doesn't sound like it would really be worth looking into reconstruction from what you described.
Sharon
Sharon, 57; Hard Palate; T1, High Grade, DX 6-12-09, Surgery, maxillectomy 7-14-09, 33 RT (9-2-09 to 10-19-09); Prothesis (obturator). None smoker, non drinker.
| | | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | | OP "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | hi guys
finally got my new obturator yesterday and i have to say its not the most comfortable thing! I got used to the second one but this one is much bigger and higher so it stops my nose from collapsing any further as i had my septum taken away too! I guess i will get used to it but at the moment its uncomfortable and a bit sore! Im going to try a flight next month just a short one to test my ears etc out fingers crossed it will be ok!
Sorry if i sound like im moaning i dont know anyone else who has an ob or one as big as this! lol
hugs n stuff
jayne
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Sometimes it takes some getting used to!!!! I don't have experience with an orburator but I can see how the size willl help support your nose as its pushing things back into place! make sure it doesn't cause severe irritation, and hopefully it will begin to feel comfortable  hugs and good luck on the flight... 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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