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#14375 07-14-2003 08:43 AM | Joined: Jul 2003 Posts: 17 Member | OP  Member
Joined: Jul 2003 Posts: 17 | I don't really feel like a new member since I have been viewing OCF.since June of 2002.I cannot begin to tell you how much this site has helped me in my fight with oral cancer.I came here scared to death, and got answers to all of my fears.Because I am a private person I did not join until now.I have sucessfully compleated all of my treatment and am a year out now and finally feeling almost normal. Still have peg tube but am weaning myself off of it. I should be getting my dentures in August.I did take Amifostine during radiation and had good results with it.Am also taking Salagen with good results.I never would have been able to have made it without this forum. | | | 
#14376 07-14-2003 10:27 AM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Gwen, I am so glad you are doing well, and really happy that you posted. Every person who comes here needs to see that this is survivable, and each person who checks in post-treatment adds more hope. I am in the same boat as you, in that I don't know how I would have gotten through my Grand Adventure without input from the very generous and helpful people on this forum. Now that you are one of us, feel free to pop in when you have the answer to a question, or some information about a topic under discussion. You should have noticed that this is a remarkably non-judgmental and supportive group of folks.
Joanna | | |
#14377 07-26-2003 07:56 AM | Joined: Jul 2003 Posts: 17 Member | | OP Member
Joined: Jul 2003 Posts: 17 | Joanna, I am so sorry I could not get back to you and reply sooner.I was having trouble logging on, my son got everthing worked out and here I am! T hank you for the warm welcome.I hope that I can be of some help to those who are going through the same battle. This Forum has been a Godsend for me and I feel like I already know so many of you since I have been observing for over a year now.Thanks to all of you for getting me through the dark days. Gwen | | |
#14378 07-26-2003 10:27 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Gwen, I'm sorry I missed your first post. I would like to add my welcome to Joanna's. Please continue to post as I'm sure you can add valuable insight and information. You have come a long way in your fight. Congratulations! Rainbows & hugs,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#14379 07-26-2003 08:01 PM | Joined: May 2003 Posts: 39 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2003 Posts: 39 | Gwen,
Welcome to the forum. You really have positive experience you can add to the forum. I haven't heard from too many people that have successfully taken amifostine, and I am eager to share that with my friend Eric who is in hte middle of his radiation. It will really help him to hear that you benefited from both the amifostine and the salagen.
I hope your recovery continues to go well and THANK YOU for posting about your experience.
Jack
Caregiver to Eric
Squamous Cell Carcinoma, L. Tonsil
Stage 3 (T2-N1-M0)
5 Years Cancer Free Now
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#14380 07-27-2003 11:44 AM | Joined: Dec 2002 Posts: 235 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2002 Posts: 235 | Gwen, thanks for sharing the positive news...and here's to wishing you even better days ahead!!
DonnaJean
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