| | Joined: Nov 2011 Posts: 33 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Nov 2011 Posts: 33 | Well, my trip to FL to see Dr. Marx for a consult on a jaw resection/reconstruction has taken a slight turn. Dr. Marx is pretty confident that I have radiation-induced osteosarcoma of the jaw instead of the aforethought osteoradionecrosis. He took a biopsy of the lesion and I had a PET scan to rule out mets, on both of which I am awaiting results. Anyone else dealt with an issue like this or had treatment for osteosarcoma of the jaw?
2006 SCC T0 N1 M0; 2006 EBRT x 33, chemo x 3; 2010 Extraction 2 molars; 2010 HBOx30; 2011 Dx osteosarcoma of mandible; 12/20/11 mandibulectomy with temp. titanium plate; 1/31/2012 chemo x 4; 9/19/2012 Reconstruction of mandible with graft from hip and bone morphogenic protein
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | I wish I could offer you more than blessings and a good luck! Hopefully its necrosis! Take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I had cancer in my jawbone. It was treated with only a mandibulectomy. I had previously had radiation to this area. There are several others who have had mandibulectomies on this forum. Its not an easy surgery but it can be done. Some sail right thru while others struggle. I was one who struggled, but after a long recovery I am ok.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | I'm in the same boat as Christine as the SCC was deeply involved in my jawbone, in fact my jaw was dwindled down to virtually nothing on my right side due to how large the tumor was. I had the whole right side of my jaw replaced and where it was a long recovery for sure (due to other issues as well) I'm alive and enjoy a good standard of living. There are new challenges to be sure but the important thing is I made it through it and am thoroughly enjoying life now.
Good luck Richard,keep your head up my friend.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Nov 2011 Posts: 33 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Nov 2011 Posts: 33 | Bullet # 1 dodged. PET scan report shows no mets! Meet with hematologist/oncologist on Friday.
2006 SCC T0 N1 M0; 2006 EBRT x 33, chemo x 3; 2010 Extraction 2 molars; 2010 HBOx30; 2011 Dx osteosarcoma of mandible; 12/20/11 mandibulectomy with temp. titanium plate; 1/31/2012 chemo x 4; 9/19/2012 Reconstruction of mandible with graft from hip and bone morphogenic protein
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