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| | Joined: Jul 2011 Posts: 131 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jul 2011 Posts: 131 | Well, so far so good. No evidence of tumor at this point. Going for follow up scans in a few weeks. God stands with me and I am not afraid.
However... I have developed lymphedema under my chin. Super unattractive and it makes sleeping hard because as the fluid builds up it starts to affect my airway. Anyone experiencing similar and what do you do to cope with it? Has anyone had it and then it heal over time?
Dx: 3/11 Stage III glottic laryngeal SCC HPV 16+ Tx Start: 7/18/11 chemoradiation 7wks - Tomotherapy IMRT x 34 / Cisplatin x 7 Tx End:9/1/11]-[as of 1/20/12 - ALL CLEAR!]
| | | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | Hi Hank,
My husband Ron had it pretty bad right after he finished his treatments.It looked like he had a turkey neck. He went in for lymphatic drainage messages and it helped a lot! Over time it will get better.
Good luck!
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yup. that's what I am doing too... lymphatic massage helps build new pathways so the fluid will drain, stimulates blood flow, and will help overall with potential fibrosis. good luck on your scan... I have one tomorrow - which always makes me nervous! ;oP
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Nov 2011 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2011 Posts: 33 | Hank, I had this issue for about a year after treatment. Mine eventually went away. I was riding a motorcycle in those days and where the helmet's chin strap cut under my chin used to leave a groove that took hours to go away. I too had the airway issues at night but sleeping on my side helped.
2006 SCC T0 N1 M0; 2006 EBRT x 33, chemo x 3; 2010 Extraction 2 molars; 2010 HBOx30; 2011 Dx osteosarcoma of mandible; 12/20/11 mandibulectomy with temp. titanium plate; 1/31/2012 chemo x 4; 9/19/2012 Reconstruction of mandible with graft from hip and bone morphogenic protein
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