#14093 04-17-2003 04:11 AM | Joined: Apr 2003 Posts: 33 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2003 Posts: 33 | Hello, This site is great and has really helped answer a lot of questions I had. I am 7-1/2 months out of Radiation and Chemo with radical neck dissection prior to treatment. I have no signs of the cancer thanks to God and great Dr.'s care. It has been tough and I thouight my tongue was so hammered that I might not eat normal again. Also developed throat strictures from radiation and had four procedures to re-open my throat. Amazingly I can now eat almost normally without pain and am sensitive to food with hot peppers, but can eat Texas BBQ! Can anyone tell me if teeth are more subject to stains, as mine have darkened unusually the past week? Also wonder if I can ever have a beer again without worrying about a recurrence. One of my Dr.'s says anything that bubbles could be a problem. Anyway, I am so happy just to be able to ask these questions. SCC-base of tongue-Stage IV-Surgery, Rad & CHemo finished 9/7/02 | | |
#14094 04-17-2003 06:55 AM | Joined: Mar 2003 Posts: 18 Member | Member Joined: Mar 2003 Posts: 18 | My name is Bob and have tongue cancer since 98. Doctors want me to have implant radiation therapy. Do you have any insight or experience with this?I would appreciate any info. I have had 4 tumors and a partial glossectomy and flap plus right lymphodes removed. The thought of drinking beer is only superficial and leads to more pain and anxiety in the end. Somebody is benefitting from all this and it isnt me. Thanks and god bless | | |
#14095 04-17-2003 07:17 AM | Joined: Apr 2003 Posts: 33 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2003 Posts: 33 | Bob,
I have heard of, but really don't have any experience with implant radiation. Mine was external beam (not IMRT)Radiation. Thanks for the reply and good luck! | | |
#14096 04-17-2003 08:37 AM | Anonymous Unregistered | Anonymous Unregistered | wm3250,
Welcome to the OCF boards. Glad to hear you are doing so well in your recovery.
I am out of radiation since Jan. 02 and haven't noticed a discoloration of my teeth, yet. That doesn't mean it's not something that happens. I'm sure someone will come on that maybe knows more about this and reply. Have you used the sitemap and the search features in the body of the site. There is a wealth of information there.
As far as the bubbles thing - that's a totally new one to me. Never heard that before and I know we have had discussions on the board about drinking in moderation.
Take crea, Dinah | | |
#14097 04-17-2003 10:04 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2002 Posts: 642 | You gotta love a real Texan...Beer and Barbeque!!...and we do have the best Barbeque in the world. I have tried a couple of baked potatos stuffed with chopped beef BBQ and have been able to get some down, but not too easily. I am happy to hear of your improvement Wm, as I have had three dilations of the esophagus, can eat a lot of stuff now, but still have a long way to go. Keep up the good work.
Danny G.
Stage IV Base of Tongue SCC Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#14098 04-17-2003 10:04 AM | Joined: Apr 2003 Posts: 33 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2003 Posts: 33 | Dinah,
This may be just a stain... Probably no big deal, but stranger things have happened with this stuff. I will try the site tools as you suggested.
Thanks | | |
#14099 04-17-2003 06:27 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello Wm Teeth are definately affected. Thankfully I have not had any problems with my teeth. I have used an over the counter floride treatment (my dentist recommended) My suggestion is that you see a dentist about what is happening. Ask him/her if they are experienced in post rad. dental care. If not then see about a referral to someone that is.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#14100 04-18-2003 04:18 AM | Joined: Apr 2003 Posts: 33 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2003 Posts: 33 | Danny, thanks for the encouragement. I keep trying for Mexican food, but that is definitely too hot and would not be the same right now without a Beer! (Being a Texan, you can certainly appreciate that.) I'm hoping the Ethyol treatments for my salivary glands, that I did every day, are going to work for me.
Mark,
I am going to see the Dentist next week! He is going to check with some of his professional friends to see if the problem could be radiation.
Thanks | | |
#14101 04-18-2003 09:05 AM | Joined: Jul 2002 Posts: 51 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jul 2002 Posts: 51 | Greetings from almost sunny Cape Cod. My husband completed his radiation treatment for tonsil cancer in late August. His bottom front teeth did more than become discolored. They all but crumbled. Just yesterday he came home with his new caps. It was expensive and a bit uncomfortable but well worth it. He has his beautiful smile back again. Regarding beer, his Oncologist encouraged it, to gain weight. Now he is really smiling. It is still tastes a bit "fizzy" he says, but somehow he is managing. He does well with eating, but spicy food makes him sweat. Good luck LM | | |
#14102 04-20-2003 01:05 AM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2002 Posts: 458 | Wm3250, I'm from the midwest originally, transplanted to CA then China. I can definately identify with the beer and barbque, the first stop on hitting U.S. shores is favorite barbque place, then the Mexican food. My oncologist, plus some of the written material from the cancer center sugget the occasional Guiness for calories and to help saliva. I know, Guiness and barb-que definately heresy, but there it is.
Mark, could you let us (or me) know the OTC flouride treatment the doc suggested? Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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