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Joined: Dec 2010
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"OCF Canuck"
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"OCF Canuck"
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Fingers crossed you get god news take care!!! smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jul 2010
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"Above & Beyond" Member (500+ posts)
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Nothing today? I pray all is well. I will keep checking on this throughout the day. God Bless!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Jun 2011
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thanks for your concerns, my husband has been with him most the day he is just resting...lung doctor says he will prob be in hospital for about a week...and he thinks he will get better and go home than...looking like the meds are doing there thing for now..of course I know it takes a normal healthy person weeks/months to get over pneumonia...so I am sure this is another battle....of course he will not be going home to home health care since he lives alone....he will more than likely go back to nursing home....we are hoping no hoops to cross with his insurance...as of 2 weeks ago his skilled nursing coverage was depleted but I believe a hospital stay for at least 3 days would grant another 60 days....praying that anyways....either way he needs to be 24 -7 care..thanks for the hugs and support..will post more as i know


FIL DX JAN 29, 2011
stage 4 Squamous cell carcinoma
inoperable due to his overall health.
started treatment: March 2011.
feeding tube and TRACH
finished 39 radiations and weekly chemos JUNE..
June- 3 weeks in hospital for pneumonia
July-pet scan showed slightly better
OCT- hospice care, cancer all thru body


Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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Glad you all are getting a break... Sort of - yes hopefully he'll get to go o a nursing facility - take care and saying a prayer for him... smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jun 2011
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little update, he is still in hospital and today he had Thoracentesis done...a tube went in to remove lots of fluid from the lung..he says he feels lots better...I asked the nurse for more info of what was done and why and she was kinda snotty and said "normally it is a one time time but in his condition, the catheter is staying in to remove the fluid" she said if I needed more info to wait for the dr and he makes his rounds anywhere from 5pm- 11 pm.....we have waited for the dr before and always miss him..very frustrating............so i guess that is where we are at now...will update as I know more....hubby is going in early am before work to try and get some answers..


FIL DX JAN 29, 2011
stage 4 Squamous cell carcinoma
inoperable due to his overall health.
started treatment: March 2011.
feeding tube and TRACH
finished 39 radiations and weekly chemos JUNE..
June- 3 weeks in hospital for pneumonia
July-pet scan showed slightly better
OCT- hospice care, cancer all thru body


Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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Joined: Dec 2010
Posts: 5,260
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Well the nurse has no right to be snotty - but frankly I'm not surprised because my nurses when I was in the hospital were down right negligent at times soooo.... The tube being in is good it will help drain any of the fluids - and prevent things from getting worse. Are they doing anything to treat the cancer at this point? glad he is feeling better. And remember you have every right to ask questions and educate yourself you are advocating for him. Take are my prayers are with you!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jun 2011
Posts: 28
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Posts: 28
thanks so much cheryl, you really brighten my day smile when hubby gets back from hospital, he is going to stay w the kids so I can go see him.....he JUST finished 8 weekly chemo treatments and 39 radiations LAST monday....and was on a 4 week break when this happened....


FIL DX JAN 29, 2011
stage 4 Squamous cell carcinoma
inoperable due to his overall health.
started treatment: March 2011.
feeding tube and TRACH
finished 39 radiations and weekly chemos JUNE..
June- 3 weeks in hospital for pneumonia
July-pet scan showed slightly better
OCT- hospice care, cancer all thru body


Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Ahhh ok. They may continue chemo at some point! Good luck my prayers and thoughts- are with you!, hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jun 2011
Posts: 28
Contributing Member (25+ posts)
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Joined: Jun 2011
Posts: 28
at hospital yesterday the infections dr came in and said that tho the pneumonia does not appear to be worsening, the previous antibiotic appears to not be going "deep enough"..there fore he is changing him to zyvox, which he said is stronger yet carries more risks, esp, bone marrow, and since his hemo levels were low they were really going to keep checking that..he gets daily XRAYS...they did also say that if he continues to keep going in the right way and optimistic the zyvox works, he may be able to go home possibly in the next week or so...I am he cannot believe they would send him home how he is, everyone is in full gowns and masks to visit him, and they remove fluids from his lungs 24-7....how can he go home? the social workers at hospital do not give much info.....his insurance thru his retirement is tapped at 60 days in a skilled facility, he makes to much for medicaid, and since he is 59 (tho he gets ss disability) he is ineligible for medicare since he as not been getting SSD for 24 months.............so looks like he will have to go home again alone and have nurses come out...thinking of trying private nurse perhaps? not sure....we just have lots on our minds as we are all as he has...and the options are very few..would take him in ourselves but 3 kids and a young baby no room and not possible at all...sigh...well will update again when i kno wmore..thanks for reading...lets me vent it out a bit


FIL DX JAN 29, 2011
stage 4 Squamous cell carcinoma
inoperable due to his overall health.
started treatment: March 2011.
feeding tube and TRACH
finished 39 radiations and weekly chemos JUNE..
June- 3 weeks in hospital for pneumonia
July-pet scan showed slightly better
OCT- hospice care, cancer all thru body


Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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On Monday, talk with the hospital's billing department. Most hospitals will have different programs that will give him reduced costs. Some facilities will give 100% free care to someone in his situation. They may ask to fill out forms and maybe even apply for medical assistance. Its worth a shot, the worst that can happen is they say no. Thats where he is right now anyway, you cant get if you dont ask. Dont be embarrassed about it either, everybody needs a hand sometimes in life.

Your FIL is like many people, biding his time til he can qualify for medicare. I dont want this to be taken the wrong way....its nothing political....it seems like what you just described is the government's way of dissuading people from taking ss disability.

Is the antibiotics given thru a piccline? Thats how they give the stronger ones. I ended up doing them for about 8 months and my blood counts were horrible. My white count was .9 and my doc gave me procreate shots to boost it back up. Once I went off the antibiotics, my numbers went back to almost normal range, the white count is 3.4 which isnt bad.

Best wishes to your FIL. I hope he continues to improve.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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