| | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Woo Hoo he's gonna fight! Thanks to all the postings I printed out and he read them today and was not even mad at me for printing them. I thank you all for all the positive responses, I think that is what has helped him make his decision. And me too of course! Will update when it will be scheduled.
Hugs to all!!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Suez
Great news. All those positive posts did the trick. let me know if Ron waffles or gets disheartened so we could go to plan B: spell out just how horrible and foolish the consequences would be if he had not chosen so wisely. Tell Ron I'm awarding him one of my imaginary medals for stepping up to the plate.
Of course with a caregiver like you, Ron would be a sorry excuse for a man not to want to live. Obviously he is not.
Seriously, choosing the surgery was one of the hardest decisions I ever made, knowing that I risked both speech and swallowing, yet it was the right one. I'm so glad the other posters here said the right things to sway Ron.
Keep the Faith
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Awesome suez... That's fantastic! Hugs to you both!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Dear Suez,
I am so glad for you and especially for Ron! Congratulations! I'll be pulling for him and keeping you both in my thoughts and prayers.
You and Ron are lucky to have survivors out there to turn to for information and support. Hearing from the survivors who have gone through the surgery is the needle on the compass. Ron can be confident he is going in the right direction!
Sending a hug, a kiss, and lots of smiles!
Sandy
xoxoxox
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | | Joined: Jul 2010 Posts: 49 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2010 Posts: 49 | Oh god, that's great news!!!
I just wanted to send you a big hug.
My Dad:
Squamous Cell Carcinoma,Stage 2, Right side of Tongue
Dx 7/19/10
Partial glossectomy and neck dissection 8/18/10
Reocurrence: 04/2011 Base/back of Tongue right side
Surgery: Partial glossectomy, flap 06/15/2011
Rad and Chemo finished on Sept/ Oct 2011
Recovery and assimilation. Enjoying life
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Aww thanks everybody!!! I'll know more tomorrow after doc apt, unfortunaley AND fortunately after being laid off since April 27th, I am back to work today so I am not going with him tomorrow and he does not want me to go with him, he says I need to get my "azz" back to work! lol I also told him he will be on somekind of anti depressent AND I am going to get with his doc to make sure he gets something for his smoking also AND drinking if possible! 
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | PLEASE don't take this the wrong way BUT if Ron does have the surgery and continues smoking and drinking won't the cancer come back? Unfortunately the only way he will quit either is when he is ready to. I can't imagine how difficult it is for you to watch someone you love be on such a destructive path. I pray he "wakes up" and chooses life and living over death.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Me too Slim...me too. If he don't do it this time, I'm going to kick him out of my house. I won't watch him do that to himself again after going thru surgery. He is an addict period, addicted to Nicotine and Alchohol and needs help that I can't give him and if he doesn't choose the right thing after this I will not watch him go down.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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