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| | Joined: Jul 2010 Posts: 95 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jul 2010 Posts: 95 | Journal of Participatory Medicine has posted a new paper i wrote, 'A Physician�s Experience as a Cancer of the Neck Patient: The Importance of Patient Participation '
My hope is that relating my experiences as a physician who experienced medical care from the other side of the stethoscope will help other patients, their family members, and caregivers recognize the importance of active involvement in their own care. Active involvement can help prevent medical errors and facilitate recovery.
You may view the latest post at
http://www.jopm.org/perspective/narratives/2011/04/18/a-physician%e2%80%99s-experience-as-a-cancer-of-the-neck-patient-the-importance-of-patient-participation/
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | hi Doc
It was good timing you posted the latest place that carried your story. I just had a very disappointing and unproductive meeting with my wife's doctor over a medical procedure he wanted to do that the seminal meta analysis studies of the 21st century on this issue disagree with what he's done for 30 years. He did not even bother to read the studies I gave him or try to refute them with science but "I'd have my daughter get this procedure"
(I missed that in NCI and NIH's validation methods)
Thanks again for the reminder that we need to be vigilant and actively involved.
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | [quote=Charm2017]hi Doc
(I missed that in NCI and NIH's validation methods)
Charm [/quote]
That caused me to laugh out loud - thanks Charm
Maybe there should be a thread about the best and cleverest comebacks to stupid questions/common scenarios
Karen
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Charm - the validation method made me smile as well: ""I'd have my daughter get this procedure" seems to harken back to the paternalistic attitude among some doctors that I thought had all but disappeared. When I was expecting my first child and asked my doctor about childbirth classes, he said, "Don't worry about classes, I'll tell you what to do when the time comes".
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2010 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Dec 2010 Posts: 62 | Terrific article. Thank you for writing it and sharing it!
Catherine, SCC floor of mouth DX 2010,unclear margins, PET scan clear, no chemo or rad,biopsy in 9/2010, 2nd excision 10/2010 didn't get all carcinoma in situ; partial gloss & excis. right floor 2/2/2011 margins clear. Part.gloss-10/5/2011 sev dys clean marg. HPV neg. Don't smoke or drink. SCC floor of mouth left side 4/2016. Dysp excis. rt palate 7/2017 Part gloss sev dys lat marg 2/2019 Part gloss free flap rt neck disc 5/2020 Part gloss bilat neck disc 7/2020 33 rad 3 cis.
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