| | Joined: Jan 2011 Posts: 168 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jan 2011 Posts: 168 | I am five days on Diflucon and see no improvement with my thrush. Other bouts saw faster results, same med. This time I taste a nutty orange flavor, which the bottle says is there. Don't remember that. Can a person sometimes need two rounds to get rid of thrush? I am going off steroids which I hope helps the meds work. On a good note: a friend drove me to the library today, my first outing since treatment ended and recovery began 2 weeks ago. I was anxious but it went fine. Tomorrow CVS? -Michelle
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Michelle, it may help to change your toothbrush. When I would get thrush, I would change every single thing that came in contact with my mouth. (the pillow cases, cup in the bathroom, toothbrush, chapstick, lipstick, etc...) I didnt want to take a chance of the thrush not going away due to my neglect.
Congrats on your recent outings! I bet it feels great to venture out after such a long time. Be careful not to overdo it, your immune system is still weak and you are very susceptible to all kinds of germs.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2011 Posts: 168 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2011 Posts: 168 | Christine: Did you change your toothbrush every day? I have every third or fourth. The doc thinks once I am off the steroid (Friday)(which raises blood sugar) and if I continue another round I should be all right. But, man, I did not need this. -Michelle
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Michelle, it was a couple years ago so Im not 100% sure if it was daily or every other day. Thrush isnt fun to have! Hope you feel better very soon!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Michelle, I brush daily , usually twice. and after' I wash the toothbrush in hot water and then dip it in Rubbing Alchohol to santize it. I have a set of 5 that I switch daily. Switch to a new bottle of alcohol often too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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