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#132161 03-28-2011 10:59 PM
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EricS Offline OP
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I had to take an opiate pain pill tonight for the first time since Dec.09. Nerve pain has been going pretty strong lately coupled with the pain from some teeth that broke last week or so ago.

Pain has been an ongoing issue for me, however after I dropped the pain meds I told myself I wouldn't touch them again. I know its stupid but I can't help but think I just failed...I hate failing .

Now the itching starts...awesome

Sorry, venting

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #132163 03-29-2011 02:07 AM
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Eric, I am sorry you are in such pain. No need to be sorry about venting, we all do it adn need this outlet. Nerve pain is the worst. I think we all have it some degree. I have had abroken tooth so I could not imagine what that feels like. I knoe I have sensitive teeth and can no do cold anymore, but that pales in comparison to a broken tooth. Hope you get relief soon.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Eric..enough already.Take the damn pills and give yourself a break xxxxx


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
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Eric - Listen to Liz! You certainly deserve a break!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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EricS Offline OP
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Oh I took the med and was up all night itching . I don't think I have ever looked forward to getting up at 4:30am until today. Thank the lord for something to take my mind off of the Damn scratching


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #132171 03-29-2011 05:25 AM
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You know Eric, even though your our super hero, don't forget your human too. Don't suffer with pain, it's not worth it xx


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
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What about neurontin? I think we talked about that before. Wouldnt that help or is it only targeted towards muscle pain? Dont worry about having to take one of those pills. Dont you EVER even begin to feel like you are a failure!!!! Hero's arent failures!!!! Hope you feel better and stop itching.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Hope your pain eases Eric. Dont like hearing my hero suffering frown


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
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Eric,

I am a newbie to this board and cancer, but had been diagnosed with MS since 2000 and know the extent of nerve pain. Please don't feel like a failure because of it. Not your fault.

As you and I know there is only so much our bodies can take and if an opiate helps, so be it.

Better than steroids, if you ask me.

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You, sir, are an inspiration, not a failure. Broken teeth... OUCH!
You deserve to ease your pain!

As for the itching... I can relate... I took Chantix to quit smoking a few years ago... had a skin reaction and now break out in random hives anytime. Used to be head to toe, now limited to just forearms lately... but it SUCKS!
Good news is benadryl usually lets me sleep through the worst of it.

Hope you're doing better today! =)

Christine

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