| | Joined: Apr 2010 Posts: 27 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2010 Posts: 27 | Oh please please please- if there is anyone who has survived a total glossectomy, I need to know what it is like. My cancer is back and I am told that is what they are going to do. I really need to hear something, anything, about what to expect.
Thanks,
Lisa
Lisa from Montana
40 years old
squamous cell-left lateral tongue & lymph with free flap skin graft and re-section,
PEG tube,
Total Glossectomy without Laryngotomy April 2011
Still mouthy as hell
plenty of war wounds
craving a cheeseburger
***10/14/11 UPDATE--Lisa has passed away
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hello Lisa:
If you'll type glossectomy in the top right search box, it'll show entries from all of the Forum members who have had one, or know about them. I haven't, but I know many others on the Forum have, so I'm sure when they read your request you will be getting responses soon. Good luck and God Bless.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Apr 2010 Posts: 27 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2010 Posts: 27 |
Lisa from Montana
40 years old
squamous cell-left lateral tongue & lymph with free flap skin graft and re-section,
PEG tube,
Total Glossectomy without Laryngotomy April 2011
Still mouthy as hell
plenty of war wounds
craving a cheeseburger
***10/14/11 UPDATE--Lisa has passed away
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Lisa,
Look for posts from Misskate or PM her. I think she also had a blog. She has had one and could give you lots of info.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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