Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#130961 03-08-2011 08:31 PM
Joined: Oct 2010
Posts: 47
roma Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Oct 2010
Posts: 47
Hi There
First of all a big Thanks to you guys for always providing me with amazing opinions.
Today MRI results were discussed, doc said all clear in the mouth but the right lymph node is not clear. They want surgery on Monday to take out lymph node/nodes from right side of the neck. please advice is it painful. doc said it would hurt to eat or drink. i was devastated today to see my husband with disappointed look after hearing about the surgery. he was in tears. please advice is there a way to find out if the lymph node is cancerous. oncologist said to see the surgeon regarding the MRI results and let them decide . please tell me is there a way to find out what is there in the lymph node?


Caregiver to husband 40 yrs. Was diagnosed SCC 09/2010. Soft palate, lft of tounge. Stage 4 HPV-
Radiation 70 gy & chemo start Nov 1 End Dec 17/2010.
1MRI-7 Mar 2011. Neck dissection-14 apr 2011. Lymph nodes removed 36 just 1 had cancer. F/U CT Scan-19 may 2011. "Cancer Free" as per doctors!
roma #130964 03-09-2011 12:30 AM
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
Patient Advocate (1000+ posts)
Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
Hi Roma. I am sorry for what you both are going through. The pathology from the neck dissection (name of surgery to remove lymph nodes) will tell you FOR SURE whether there is/was cancer in those lymph nodes on the right side. From your history, I take it they removed left side lymph nodes before.

As far as whether surgery is painful, I had the surgery at the same time as my tongue surgeries so its difficult to single out what hurt when it all did, but I do not recall my neck being a particular sore spot.

Try to stay calm, take one step at a time. Get the surgery and move on from there depending on results.

We are here for you.

Donna
(a fellow Canuck)


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #130980 03-09-2011 05:33 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
He could ask about a FNA (fine needle aspiration). That's how my cancer in my node was confirmed. Problem with the FNA is that they could miss drawing up cancer cells so the path would come back negative when actually it could be cancerous. May be worth the question though.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #130981 03-09-2011 05:49 AM
Joined: Oct 2010
Posts: 47
roma Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Oct 2010
Posts: 47
Thanks Donna and David

His left nodes were never removed. Through FNA on the right node cancer was confirmed. Docs want to do surgery on the right side, they said they will remove many nodes which are are closer.

Our question is exactly, why only after surgery can it be determined whether cancerous or not? I wish there was another way to find out without getting under the knife. 2 days hospital stay. he is so week already just started to recover from radiation and chemo. Now we have to endure the surgery.


Caregiver to husband 40 yrs. Was diagnosed SCC 09/2010. Soft palate, lft of tounge. Stage 4 HPV-
Radiation 70 gy & chemo start Nov 1 End Dec 17/2010.
1MRI-7 Mar 2011. Neck dissection-14 apr 2011. Lymph nodes removed 36 just 1 had cancer. F/U CT Scan-19 may 2011. "Cancer Free" as per doctors!
roma #130984 03-09-2011 08:21 AM
Joined: Jan 2009
Posts: 1,844
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
First let me say, I'm sorry you and your husband have to go through this. It sucks, been there and bought the t-shirt . I'm going to get practical here so just remember don't take offense...my delivery can sound harsh.

You've just had a pathology report confirming cancerous lymph nodes...get the neck dissection. Trust me it'll be less painful then leaving it there and advancing to a terminal condition. Cancer in the lymph system can go distant in the body quickly and that's why they are going to remove not only the cancerous node but those around it that may have cancerous cells too small to be detected yet.

Imho its just smart, but if you are concerned about the pain factor they do have drugs to help with that. Many of us have had dissections and are alive because of them and can think of more painful moments to be sure.

Keep your chin up

Eric

Last edited by EricS; 03-09-2011 12:01 PM.

Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #131149 03-11-2011 10:51 PM
Joined: May 2010
Posts: 638
klo Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)
Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Joined: May 2010
Posts: 638
Hi Roma

The reason they are opting for surgery to determine whether or not there is cancer there is because the only other way to test is by fine needle biopsy (FNA). As David has said, this type of procedure may miss a tiny remnant of cancer and give you a false clear result. If you didn't get another test (MRI, CT, PET) for months, those missed microscopic cancer cells would have been given time to grow and invade again, making surgery even more invasive and difficult.

Roma, I know you are both very disappointed and don't think you can do it again, but you can. Once you get over the shock and get used to the idea, you will both rally as you did before.

In the words of Gandalf the White in Lord of the Rings when faced with overwhelming odds against beating the enemy,
"Courage, Merry, courage"
By the way, Gandalf and Merry won the battle and went on to win the war.

Karen


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
klo #131206 03-12-2011 09:57 PM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
There really is nothing left to say as everyone here has already said it - so I would like to wish you the luck, and say that I had a dissection 5 weeks ago and mostly I'm just numb.

Take care... I know the situation is terrible. But you can get through it.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #131243 03-13-2011 08:35 PM
Joined: Nov 2010
Posts: 27
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Nov 2010
Posts: 27
Adding my 2 cents... My husband had a left-sided neck dissection when they found the cancer in the lymph node, to be sure to remove any questionable nodes adjacent to the infected one. Prior to this procedure, he had a FNA biopsy which came back inconclusive... I find it incredible as it was a 4cm node "almost completely consisting of squamous cell carcinoma"...

Recovery from the dissection was minor compared to the sinus surgery he had done at the same time. I don't know if it gives you any idea of how much pain...

My heart goes out to you! May your strength and health return with speed and your conviction remain strong!


Wife of Tom, 42
SCC/Tonsil DX 9/23/2010
PEG/Port 11/2010
TX Begins 11/16/2010
Chemo ended 12/28/2010
Radiation ended 1/6/2011
Neutropenia 1/7/2011
Osteoradionecrosis 09/2011
Jaw Resection/Flap 01/2012
*********************
How do you want to be remembered?


Mrs. V #131324 03-15-2011 06:02 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Mrs. V sometimes a biopsy is only as good as the path doctor who is examining the results... Seriously - I am still trying to get over the fact that an MRI missed a 1.5 cm node... Seriously - it was there before the MRI that came back clean I could palpate it over a week before.

It's all about who is working the results...


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #131334 03-15-2011 07:04 AM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Of course any medical test has the possibility of being misread. Just because it happened to one person does NOT mean it will happen in your situation. A biopsy is much more accurate tool used to detect cancer. Its NOT cancer til the biopsy says so.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Page 1 of 2 1 2

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5