| | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | OP  "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | Well, the worst part of yesterday was getting Rod to the hospital to get the results of his CT & PET scans. We had to pull over on the highway for him to get out...couldn't breath, shaking...wanted to walk home because I wouldn't turn around and go home. I eventually got him in the car and we finally made it to the hospital. I told the nurses of his anxiety and they said they would get an oncologist to see him straight away. The first thing the oncologist said that there were no 'hot spots', so no active cancers showing. He said he will probably have the lump in his right lymph node forever, but there was no sign of cancer in that either, and the lump was lined with calcium which was a good thing. So after all the anxiety, the news was great. Next appt is late May. The doc said there was a tiny hot spot above his right brow, but it was highly unlikely it was a cancer & that PET scans pick up everything and anything, so could have just been sinus. Will sleep better tonight!!
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | I can't say it enough....
YAY!!!! CONGRATULATIONS!!!! I am so happy for Rod, you and your family!!!!
When one of us has a victory, it's like all of us have one too!
Thank you for the update and for giving us all some extra hope!
Love you a whole bunch!
Sandy
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | OP "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | Thanks Sandy, love you a whole bunch too!! xxxxx
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Whew! What a relief! Jeanna - I am so glad for the wonderful results! Enjoy and celebrate!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Congrats!!!! He certainly had a rough road. Poor guy was terrified of going to the doc. I cant blame him, I dont like going either. So glad the PET was clear! Now he can relax.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | It's perfectly manly to take anti-anxiety meds. I did all through treatment. Those scan reports can be frightening.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | WOOOOOO HOOOOOO Congratulations! My husband Ron is 6 year's cancer free and we both still get scared and anxious when he goes for his check ups. I don't think that will ever change. You two should go celebrate this weekend!
Hugs,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | YIPPEEEEEEEEEEEEEEE for Rod. I know he's feeling so much better now. Having scans and waiting for the results freak me out to the point of insanity. I am so very happy for both of you. Celebrate!
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | Talk about a panic attack! I am so glad you got good news to celebrate!
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
| | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | OP "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | Thanks all for your support...Rod has spiraled into depression since last Thursday. I saw my psychologist on Wednesday, she said it is because it has been for the last 2 years we have been expecting the worst everytime we go for an appt. Now that it's good news, I don't think it has sunk in with him. Have had all this other crap going on with my health, family in NZ, money & my ex employer, so I'm just in need of a brick wall myself. Even my anti depressants don't seem to be doing anything. After court [with work] - and I have found a solicitor - no win no cost, to represent me when it happens mid year, we are going to go to Tassie for a week...that thought is the only thing keeping me sane at the moment. Rod however appears extremely unwell, has slept all day on the couch, woke for 10 mmins, then went to bed.....bit worried, although it might just be a virus or something.....sometomes I could scream at life.....
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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