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Gabe Offline OP
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I had my 6th month check up today at my hospitals cancer clinic.
I know I have issues with either inflammation and or granulation, ulceration,Leukoplakia,??? and have had a biopsy scheduled for the 7th of March for some time now with my oral surgeon.
This is on the front between the tongue and flap.
The scare was when the (new to me doctor but said was an assistant to the H&N surgeon) looked down the back of my throat and said she could see a white patch.
She sprayed the area to numb it and 10 minutes later the H&N surgeon came to have a look with her. He prodded and poked and said it was something in the crypt on or near tonsils. Did not catch it all but think he mention debris and a little bit of something did fall out. Have since goggled and in case it happens to someone else though I would post it.
Here is just a little bit of what I think was the problem .
�The tonsils are two glands found at the back of the throat. They are part of our immune system, making antibodies and white blood cells which help protect us from infection. Tonsil stones (also known as tonsilloliths) are a common condition characterised by small, hard, foul smelling, yellow stones located within the deep crypts of the tonsils. Food particles, bacteria, oral debris and white blood cells become trapped in the crypts, hardening & calcifying over time.�
No one has mentioned a bad smell to me so hope I did not have that confused
Now for the biopsy in a couple of weeks..will let you know.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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Hi Gabe. I am very sorry that you are having a problem. Ive never heard of what you described. Hope all this turns out to be nothing. Best of luck with all your tests.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Sorry to hear Gabe! I am sure everything will turn out ok! I shall send some extra prayer's up. I will be thinking of you also.
Many Hugg's
Roz


Stage 1V scc of toncil 12/1/09
Peg in 01/18/10
35 rads 3 cisplatin
tx ended 03/02/10
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Posts: 157
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Its nothing gabe I am sure, I had reeeeeeeeaaaaaalll bad tonsilitis at the beginning of the journey and was totally unrelated to everything going on. I will keep you in my thoughts, I should be starting work that week and will be looking for updates everyday! Good Luck

Your Friend,
Nate


SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
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Best of luck with your upcoming appointment Gabe. I'll have everything crossed for a good outcome. Steve has his 3 monthly appointment on the 3/3 so I'm with you next week on the whole nervous, stressed out front. Take care Gabe and keep us all posted on how things go xx


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
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Gabrielle,

Best wishes with your next appointment in March. Hope everything goes well.

Take care

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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"OCF Canuck"
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Will be thinking of you. Oh how I know that this waiting and worrying can take over your life and then once you get the "all clear" how you kick your own butt because you wasted all that time worrying! No need to repeat my mistakes!! Sometimes a lump is just a lump!

Try to put this to the back of your mind - you have done all you can. In the meantime, try to do something special for yourself each day. Do NOT let cancer steal these days...

Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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Gabe Offline OP
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Thank you all for your concern. The scare was resolved in 30 minutes once the white spot (debris) at the back of my throat\tonsil was removed.
The biopsy on the 7th March is just a part of the �keeping an eye on the leukoplakia\inflammation� (front of tongue\flap) that I have had since the original operation. I have had a few surgeries to nibble away at it with not much success so as I am in no pain opted for the biopsy just to put my mind at rest.
I had a biopsy in 2009 and am expecting much the same result i.e no cancer but probably a few nasties like these pasted from last report �The adjacent epithelium is hyperplastic, shows prominent parakeratosis with bacterial colonies and abundant candida albicans organisms being noted in the superficial epithelial layers. There is no evidence of residual tumour.- DIAGNOSIS TONGUE : NON-SPECIFIC CHRONIC ULCER.CANDIDIASIS.�
Sounds awful doesn�t it but the comment from the specialist is mostly - not much to worry about!
The only thing I had forgotten about was booking a yearly luncheon for myself and 3 of my female colleagues for the following day. It coincides with International Women�s Day and at the time marked no special dietary requirements.
As I will no doubt have a few stitches I have changed it today. eek
Love to all
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
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So glad to hear that it is not OC!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Aug 2007
Posts: 1,301
Gabe Offline OP
"OCF Down Under"
Patient Advocate (1000+ posts)
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Posts: 1,301
I will know after next weeks (7th March) biopsy result is in but am trying not to worry too much!


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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