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Susan3175 #128201 01-20-2011 04:57 AM
Joined: May 2010
Posts: 224
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Gold Member (200+ posts)

Joined: May 2010
Posts: 224
For me, radiation was harder to get over. I am young and bounced back pretty quick from surgery. It took me maybe a month to bounce back from surgery. It was a tough month, but it went pretty quick. Radiation, I am now 6 months out and still feeling it's affects. Dry mouth, skin issues, still have thick mucous buildup when i first wake up, and when i exercise, also have taste issues that i didn't have after surgery but before radiation, and I can't stand to eat some of what used to be my favorite foods.

Everything is different for every person. For me, radiation did more damage then surgery, but it's different for everyone. I wish we had the option or radiation/chemo first, but for most of us that have issues with the front of the tongue, they almost always go with surgery first. Actually, i haven't heard of one person so far to be offered chemo/radiation before surgery for anything so far except for base of tongue when it comes to oral cancer.

I will keep you in my thoughts as I think i read that ur surgery is coming up quick!
I didn't need washcloths for drool, cuz they gave me a suction hose with a "red robbin" on the end. the red robbin is a soft tube that almost looks like a straw, but it's sealed at one end, and has a whole or 2 a little ways up from the sealed end. It was soft and I was able to keep the drool issue controlled with it, plus when i got anxious, i would bite on it, lol.


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
bethers0808 #128687 01-28-2011 06:46 AM
Joined: Jan 2011
Posts: 15
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Joined: Jan 2011
Posts: 15
Gee - looking back to my first post on this thread and now I am home post op I feel like I have been able to accomplish this thus far only with the help and advice from you all. Waiting for pathology on ND nodes removed this coming Tuesday and trying to heal from the mob necktie are my challenges for the moment. Have not been able to figure out how to sleep effectively to avoid damage to the incision (have been using a La-Z-Boy). NG tube gave me lots of trouble so I demonstrated the ability to swallow and they took it out before I went home. I was choking on it regularly. Thanks all - I'll keep you posted.


Craig
Male Real Estate Broker 57
Dx SCC 12/17/2010
Hemi-glossectomy and Selective ND 1/21/2011 T2N0
Submental island flap
NG out 1/25/2011
ND Pathology 34 nodes out, all benign
Non Smoker since 1984 moderate alcohol consumption
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