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#128254 01-20-2011 06:50 PM
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BrandyK Offline OP
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I had yet another colonoscopy today to hopefully get my large polyps removed. Well, my doctor was surprised when he saw that they had grown. They were the flat kind and are now more like a half ball and too large to remove safely. I will have to have a colon resection. He did take a couple little pieces for biopsy but he did not think they were cancer. For some reason my genes like to create tumors. I have seen genetics people and they are not able to figure out what I have. I am blessed. ;-)


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #128256 01-20-2011 07:04 PM
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Im sorry to hear you are having problems. Strange that the docs dont know why this is happening. Best wishes for your upcoming surgery. Hope its the last time you have to have an operation.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #128281 01-21-2011 10:08 AM
Joined: Nov 2010
Posts: 128
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i am so sorry that you have to go through this.. i am looking at your profile and you are so young and have already been through so much..actually this bologna is a lot at any age.. im sorry this is happening for you.. in my prayers and thoughts..


Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux..
Painfree and rested 6/19/12
BrandyK #128283 01-21-2011 10:16 AM
Joined: Jun 2009
Posts: 875
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Sorry about your colon problem. Hopefully the upcoming surgery will clear all of the problems and you won't have them any more. I'll pray for you - when is your surgery scheduled?
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
julieann #128350 01-22-2011 12:01 PM
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Posts: 126
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Brandy, my daughter in law at age 19 and grandaughter at age 10 both had to have their colon completely removed due to a genetic condition called Familial Adenomatous Polyposis, It is a genetic condition. I think with my daughter in law it was a while before it was diagnosed, finally at the Mayo Clinic. Since her diagnosis she was told all her children had a 50% chance and sure enough first child was tested and also had to have this surgery. My understanding it creates these polyps throughout the colon. Might be something to look into.

Sharon


Sharon, 57; Hard Palate; T1, High Grade, DX 6-12-09, Surgery, maxillectomy 7-14-09, 33 RT (9-2-09 to 10-19-09); Prothesis (obturator). None smoker, non drinker.
wheels #128351 01-22-2011 12:08 PM
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Posts: 96
BrandyK Offline OP
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Thanks everyone for the thoughts and prayers. I know they help and are very appreciated.

Sharon, I have looked at that but there is no one else in the family with an issue and I didn't fit any of the other symptoms for that. I have other health issues that fit in this equation as well. I know its genetic and just go with that. I am not sure if anyone will ever be able to figure it out which is ok. I will just continue down this road that has been given to me the best I can.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #128388 01-22-2011 10:44 PM
Joined: May 2010
Posts: 224
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Sometimes people have genetic issues, but they don't always show up, they can run in the genes but skip generations. My grandfather has had issues with polyps since he was young, and none of his immediate family or grandparents had it, but his great great grandfather had it, and they say it passed through a few generations with no issues.

I am sorry you are having these issues. Hopefully the doc is right and they aren't cancer. For my grandfather, his polyps were cancerous after 30 years of getting them every 5 years or so and having them removed every time.

I will keep you in my thoughts and hope your surgery goes well and biopsys come back negative.


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
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Wishing you well. I promise, I wont write anything about your genetics. Sorry if that is something that should have be left alone. Do you know when your surgery will be?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #128413 01-23-2011 11:28 AM
Joined: Sep 2009
Posts: 96
BrandyK Offline OP
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Posts: 96
No worries about genetics. I know that a lot of my medical issues are genetic and there is nothing I can do about that. I just go with the flow. It gets a little frustrating but not much I can do about it. I have always just dealt with things growing up. This is no different.

I am not sure when surgery is going to be yet. I go in to see the surgeon on Feb 8th and I don't think they will waste to much time before they go in. I know they usually like to wait about 6 weeks in between colonoscopies so I am not sure what they will do with this. I don't know if this is due to the clean out process or not.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #128415 01-23-2011 11:51 AM
Joined: Jul 2009
Posts: 1,406
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Posts: 1,406
Brandy, I'm so sorry to read about what you're going through. I'll be thinking of you!

David 2


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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