So, I took charge and tried won ton soup the other night now that I am 5 weeks post treatment and actually got 3 fairly large dumplings down with broth without choking to death. It was very foreign and I struggled with chewing a bit but got it down. It just felt dry and slow but it went down, I took a break since that day and continued on with ol' PEG like normal while considering other options. I am so damn ready to start eating so I can get this tube removed. I noticed this morning some white patches on parts of my tongue but havent had thrush since middle of treatment. I still clean my mouth daily with salt/baking soda and also brush my teeth, maybe the won ton scorched me? Well, I hope it is not thrush returning, Korinne says my breath does not stink like thrush so maybe it is just some sort of healing process. But anyways, I just wanna get motivated to find foods to eat, I have my appetite back because I get the stomache rumbles every few hours....

Your Friend,
Nathan

Yep, I am way past ready too. I want toast with cinnamon and sugar, garlic toast, pizza, tacos...I think anything with TASTE and flavor!

Good on you getting the won ton soup down! I keep getting blisters after I eat. Don't quite get what causes them.

Keep at it...and keep an eye on that white patch!

Michele in IL

Nathan,

That's a great step, but don't stop now! I remember eating a lot of soup when I got back to eating. Soups and other wet foods like slightly overcooked pasta, although my greatest achievement was a slice of pizza and a couple of days later, a bowl of clam chowder. Most of us seem to have the experience of the first couple of bites tasting good but after that, nothing.

Thrush may be an ongoing problem for you, I went through two bouts of it over the summer, so do keep an eye on those white spots because you never know.

Keep at it, you too Michele, because it will happen. Slowly, but it will happen!

- Margaret

Great job Nate!!! Thats what it takes, practice and alot of trial and error. Wonton soup was one of my favorites when I first finished rads. I would go to my local chinese restaurant and order a large bowl and sit there for what seemed like forever eating and eating. I was so proud of myself, I would go everyday. Best of luck with yoru continued recovery.

Hi, Nate,

You sound great! I am impressed that you are motivated to try different foods. That is awesome! Keep at it. I remember that my husband would have the urge for something specific and I would cook it for him. Then after a few bites he lost interest. But the desire to try something was a huge breakthrough.

All my best-
Anita

Wonderful!! Ron has thrush, which I called his doc and told them he is bout out of the nystatin and the thrush is still there, and asked bout Difulcan. Waiting to see what they say BUT he is going nuts cuz he has his appetite back and wants to eat everything but has no clue exactly what! he was going thru my canned foods, my freezer, my fridge and all food cupboards looking for something, he is going nuts for Stouffers Mac and Cheese so he is going to get some today. It's slimier than other mac and cheeses lotta sauce so maybe try that Nate. Ron said if he can get them noodles down it's ON he says. I'm gonna have to ask him bout some Won Ton soup. He still can't get those chunks of potatoes down in Clam Chowder, but he ate half a can of creamed corn. And canned spinich is easy peasy to slide down too if you like it. We eat it warm with butter but he was brought up with putting in a bowl after draining as much liquid as you can out and putting in vinegar, ya vinegar and letting it sit in fridge for a bit. So if you like sour...there ya go! lol
just a couple suggestions. Keep on eating that PEG will be out of you in no time!

Hi Nate and Suez, I don't know if you have any Trader Joes stores near you but when John was having difficulty eating he was able to eat and enjoy their beef barley soup. It comes in a cardboard container and is one of those ready to eat soups. Good luck, I think you are doing great for being so soon out of treatments. John had no appetite and zero interest in eating for months. He used to say it was a chore and something he did because he knew he had to.

oh ya i fought a lot with Ron earlier, not understanding the pain he had with his throat and why he couldn't get food down. but now he says the swelling is down and he is starving! Oh Slim ron's really been eating a lot of varieties of foods. He has all kinds of soups, favorite is my son's homemade clam chowder, just the potatoes must be very very small, last night he had campbells cream of broccoli/cheese he said he had a full belly after he ate the whole can himself! today he is buying stouffer's mac and cheese frozen dinner. he has ate chili, baked potatoes, lotsa oatmeal, all kinds of creamed soups, loves loves small curd cottage cheese and he eats 1 big container in 1 day! yogurts and mc donalds milk shakes he mixes half of one of those with his canned formula he used to use for his feeding tube so he gets more calories, his face isn't as sunken in anymore, now to see if he can get his belly back and some meat on them rib bones of his! also today doc gave him a script for difulcan for his thrush once that is gone he will get one of his favorite meals and try it. OnCor salisbury steak and gravy, mashed potatoes and creamed corn! ya lotta people say ewww to oncor but i am the queen when i make that! lol and i really make more gourmet meals this one is so easy and he always tells me he is easy i don't need to cook like it's a resteraunt! but that's how i've always cooked.

I lived on a fish spread my husband makes for the first three months post treatment. The grilled fish and mayo combo was moist and easy to swallow without being slimey.

Good for you Nathan!

I know its challenging relearning to eat but every step forward is really rewarding. Wishing you lots of culinary successes!!!!

KATE