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#12726 10-31-2007 08:20 PM
Joined: Feb 2007
Posts: 1,940
Cookey Offline OP
"OCF across the pond"
Patient Advocate (1000+ posts)
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"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Dear friends

I am writing this post to ask for your prayers for the wife of my cancer buddy Alan.

From May until September Alan and i exchanged over 200 e-mails.During that time i learnt a lot about Alan a 12 year laryngectomee survivor,and his family,and his support,wisdom and advice in both practical and emotional matters i was dealing with was invaluable.
Yesterday Alans wife Maggie was diagnosed with Base of Tongue carcinoma,with neck involvement.
Maggies general health is poor and she has survived a stroke and suffers from emphysema,so surgery will probably not an option.

Alan is a deeply spiritual man and an elder of his church in Scotland ,and i know he will appreciate you all praying for Maggie and his family.

Thanks guys

liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#12727 10-31-2007 11:34 PM
Joined: Apr 2007
Posts: 794
"Above & Beyond" Member (500+ posts)
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Posts: 794
Hello Liz,
Of course I am praying right now, and will have her placed on our prayer tree.
Reading that she might not be a good candidate for surgery perhaps she would do as well as my mom did with the radiation, Erbitux, followed by the brachytherapy. I am still amazed at mom's continuing recovery. The hardest part appears to be the lymphedema from the neck dissection.
All the best to Alan and Maggie.


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
#12728 10-31-2007 11:35 PM
Joined: Jul 2006
Posts: 68
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they have my prayers with them.i will pray every day for them.keep us posted about alan's wife.my thoughts and prayers are with you too liz.

showin love
lynn


linda anderson
#12729 11-01-2007 12:17 AM
Joined: May 2007
Posts: 632
"Above & Beyond" Member (300+ posts)
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To hit the sane family twice just beggars belief Liz,
My thoughts continue to be with them.

Brenda x


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#12730 11-01-2007 02:36 AM
Joined: Oct 2007
Posts: 8
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Posts: 8
Sending my prayers to Alan and Maggie and hoping this episode will be as 'kind' as it can be.

Lynn
xXx


Age 49 SCC Lt tonsil/soft palate with tonsillectomy 18-7-2007, 7-8-2007 left sided neck dissection 3 nodes positive, 22-8-2007 PEG insertion. 35 doses radiotherapy and 2 doses of Cisplatin (3rd dose cancelled due to neutropaenia. Finished Tx 19th Oct 2007 lost 48lbs in weight.
#12731 11-01-2007 12:43 PM
Joined: Jun 2007
Posts: 510
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Alan & Maggie just went to the top of our prayer list!


Lois & Buzz


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#12732 11-01-2007 05:21 PM
Joined: Apr 2007
Posts: 794
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Hello Liz,
Just wanted you to know that currently 153 people from the USA are praying for Maggie and everyone who's heart she has touched.
Gotta love family and friends who have faith and spread the good word. I have been thunderstruck by the amount of people who have e-mailed me.
God bless you, Alan, Maggie and all their family and friends. I truly hope you all feel the peace.
Much love and more prayers,
Donna


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
#12733 11-01-2007 06:49 PM
Joined: May 2006
Posts: 57
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Unbelievable............

My prayers are there.

Godspeed,
Mandi


Stage III tonsil, Dx 8/14/2002,chemo and rad...reoccurance 8/3/07,Base of Tongue,vocal cords,stage IVA,total larynectomy and glossectomy 9/4/07 with pec flap...reoccurance Nov. '08 and Feb. '09 (positive margins remained after each operation) Second pec flap May 7, 2009. Still positive margins.
#12734 11-01-2007 10:05 PM
Joined: Jul 2007
Posts: 16
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Hi Liz, and all supporters, survivors and carers how can I begin to thank you all.

I can hardly see my screen as I read your messages of support my eyes well up with gratitude for the prayers of so many of our Lord's Church commending my wife to his infinite love and grace.

Maggie has taken the news remarkably well, but appreciates the next few weeks and months of treatment will take their toll. We await a full surgical biopsy on the base of tongue tumour, as Maggie's Chest consultant has to give the ENT Surgeon the all clear - even for this minor procedure as it will notwithstanding the duration involve a full general anaesthetic and her lungs are very bad.

All of you togetherwith my friends from a UK supporters site, and not least Liz have all been so rich and generous in your love and compassion for a fellow human being, afflicted with much health troubles and she is not old, Maggie will be sixty in January and the family were together yesterday to show their support (and conspiring to make it the very best birthday of her life).

We also celebrate our 35th Wedding Aniversary on Sunday 4th November and have been together for 38 years, not always a bed of roses by any stretch of the imagination but we have forgiven each other as our Lord instructs and have relied heavily on his Grace to support us through our problems. He has never let me down and never will, and when the time comes we shall not fear our mortality for death is not the end but another and better beginning, God does not prevent our suffering, but knows what we face Christ suffered first for us, but will never allow us to bear our hardships alone to which you all are living testament.

Your prayers are returned in love and may God continue to pour his Blessings upon you all and all whom you love, yours in Christ, Alan.

#12735 11-02-2007 09:50 PM
Joined: Feb 2007
Posts: 1,940
Cookey Offline OP
"OCF across the pond"
Patient Advocate (1000+ posts)
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"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
As you know Alan i dont have much in the way of faith,but i know the importance you put in yours.
It is the least i could ask for from these wonderful people,and i am glad it has brought you comfort.

I do know that Robins memorial service touched me in a place i didnt know existed,and i can only guess how your faith sustains you.

I envy you Alan and i know i would be spitting hellfire and brimstone if this was happening to me.

i hope you and Maggie and the boys have a very happy celebration tomorrow.

love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
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