#12698 10-30-2007 11:43 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | After a few months of debate, have booked flights for us to go to CA on November 18th! Via Chicago.
Haven't told my daughter, am hoping to surprise and please her--she has so much going on in her life life that's bad right now, at least I can just give her a cuddle and she can see me whilst I still 'look' okay and can function.
Been doing some more research on lung primary and my jaw tumour and although I'm relatively symptom-free lung-wise, and the Zometa should, apparently keep my jaw-bone well under control, total prognosis is still really lousy--months--so if I don't go see Sue now, may never happen again.
what's the weather like in Costa Mesa in NOvember????? Do I need sheepskin coat or should I pack a pair of shorts?????
Bren
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#12699 10-30-2007 01:06 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Bren, I am soooo glad and proud to hear you are doing this trip for you and your daughter! And we all know it was a scary decision for you. When are you going to tell her you are coming? Don't know about Cal. weather, but you can find average temps. for all months there on the net. Good for you  Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#12700 10-30-2007 01:38 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Brenda, Good for you!! Go to www.weather.com type in her zip code and you can see what the temps are like. you could also go to www.noaa.gov
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#12701 10-30-2007 01:43 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Good for you, Brenda! We look forward to welcoming you to the U.S.....Bring your shorts, just in case you want to take a dip in the Pacific while you're here!
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#12702 10-30-2007 02:11 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Brenda -- If you want to make a short side trip, Costa Mesa is only about 5 miles from Newport Beach, home of OCF. (And there is great shopping at South Coast Plaza in Costa Mesa -- check out the stores here .) cheers, Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#12703 10-30-2007 02:12 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Yea Brenda !!
I don't know about CA as I am in NY ..If you were coming here I would be telling you HATS COATS AND GLOVES !!! But how nice that you can get over here to SURPRISE HeR !!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#12704 10-30-2007 02:27 PM | Joined: Jan 2007 Posts: 97 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 97 | Brenda-
That's great that you are going to go see her. The southern CA weather is pretty mild, even when it's "cold" you can get by with a sweatshirt!
Melissa
Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
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#12705 10-30-2007 03:24 PM | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Yea Bren!
Seize the day, I say...you are doing that well! We will all say a little prayer that your health holds and you can really enjoy your visit.
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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#12706 10-31-2007 09:50 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | It will only be a short visit--8 days--only time Ray can get off work and I already know Sue has used up all her vacation time. But we'll be able to see each other every evening and she has the Saturday and Sunday off.
I'll be staying in a motel where I've been before, but a friend has already said she'll give us a ride from the airport.
She is my 'go-between' and will 'prime' Sue without actually telling her it's me that's coming--probably just tell her it's one of their mutual friends and to 'clear her diary'.
I am so excited, but at the same time so frightened!
I've got insurance--will be recompensed for loss of baggage, money, am covered for developing food poisoning, breaking my leg,--just about anything really, as long as it's not cancer! So that's another hurdle over, thank goodness.
I so wish I could take time out and come and see you all whilst I'm there :p Aw well.
May just get the 43, then 55 bus down the road to Newport Beach to look up the OCF---anyone know the address?? Can't find it on the site map!
And finally--a little gallows humour--my local paper had an article in today about health costs in other countries--it's only
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#12707 10-31-2007 10:07 AM | Joined: Apr 2007 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2007 Posts: 64 | Oh, Brenda you put a big smile on my face, you are a funny girl and a brave one too!! I hope you have a wonderful time in California. Sounds like you are going to have one very surprised daughter!! I also have a son in California but he is in the Bay area. I miss him and don't see him nearly enough.
Also, regarding the shipment of bodies, I think you can get insurance for that also.
Adele,
mucoepidermoid carcinoma of the submandibular gland, 05/06, left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo,
11/07 surgical biopsy of lymph node left neck, no cancer!
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#12708 10-31-2007 10:09 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Brilliant
Have a super time..
Sunshine..love and hugs
Helen.
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#12709 10-31-2007 10:48 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Dont be such a cheap skate ,just pay the business class fare like every one else. ;)any way you cant come back in a box i am coming to see you before i go to Abu dhabi!!!!
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#12710 10-31-2007 03:16 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Brenda,
Your daughter is going to be so happy to see you. I'm so proud of you. Still, wish you could have come to Philadelphia-that's just the selfish side of me speaking. Bring your camera and have fun!
Love you lots,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#12711 10-31-2007 03:19 PM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | I am so proud of you Brenda. I would like to see the look on your daughters face when she sees you.
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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