| | Joined: Nov 2010 Posts: 49 "OCF Down Under" Contributing Member (25+ posts) | OP  "OCF Down Under" Contributing Member (25+ posts)
Joined: Nov 2010 Posts: 49 | SO i've looked on the main website- can't find anything solid. What are my chances of recurrence given the SCC was detected very early and there was nothing in nodes etc?
Monica,33 Mum of 3. Former smoker
SCC right lateral tongue. Intially thought to be cell dysplasia and dx as SCC after surgical excision.
Nov 2010- partial glossectomy (1cm in width), partial neck dissection. Margins clear, nothing found in nodes- YAY! Benign tumor on saliva gland.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im not sure if there is such a thing listed about someone's chance of getting a recurrence. My first round was Stage 1, no nodes and yet it came back again as Stage 1 with no nodes involved. My third time I had oral cancer I was Stage IV without nodes involved. Stats are not something I personally pay much attention to as I probably am living on borrowed time. Best thing to do is to move on and enjoy your life without being afraid of a recurrence. If you would have one, then that is the time to deal with it. I understand your fear and believe me, nobody fears it more than me. After 5 years, your chances of a recurrence go way down, sorry but I dont know specific numbers.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Stats are unreliable. My first time was stage 1, no nodes. My second time was only three months after clear PET and it was stage 2, with one node involved. This time have not got a definite, have no idea what it will be.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | The reason this is not in the site is there are no good studies that look at this. There are many confounding factors to every individuals disease. Staging for one, cause for another. Add collateral health issues and that really muddies the water. Age changes everything.
You get the idea, and I could have made this list longer. The fact is that there are no statistics that I would put up on the OCF site that are truly accurate given the uniqueness of each persons disease and personal biology.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | The only stats that I have seen (and are probably dated now with the changing etiology of OC due to HPV) are: 1. IF - you have a recurrence there is an 80% chance it will occur within the first year after Tx. First year recurrences are very dangerous. Take your followups and aftercare seriously. This is also why year one and two are milestone years 2. That number drops to 15% in year 2, post Tx. 3. After year 2 there is a 5% chance of local recurrence. As far as locoregional and/or distant metastesis I do not know. Don't freak out at every little sore throat, post nasal drip, ear infection, (or even bad initial scan reports) etc. (or focusing on stats) or you will drive yourself totally nuts - ask me how I know this ;-)
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Nov 2010 Posts: 49 "OCF Down Under" Contributing Member (25+ posts) | | OP "OCF Down Under" Contributing Member (25+ posts)
Joined: Nov 2010 Posts: 49 | Thanks Garry My ENT doc reckons my chances of reccurence are pretty low (5%) I don't know what he's basing that on but I like that stat a lot 
Monica,33 Mum of 3. Former smoker
SCC right lateral tongue. Intially thought to be cell dysplasia and dx as SCC after surgical excision.
Nov 2010- partial glossectomy (1cm in width), partial neck dissection. Margins clear, nothing found in nodes- YAY! Benign tumor on saliva gland.
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