| | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | We've tried Carboplatin, Erbitux, taxol, cisplatin, ermuxitab, 5-fu.... those have all been unsuccessful when it comes to removing the lung mets... any other drugs we might talk to the doc about thursday?
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | We had someone on the boards that bought a great deal of time doing RFA on the mets, while other options were explored. This is not curative, but could eliminate the larger lesions, buying time. It's a long shot, but has no systemic downsides.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | Thank you Brian. I don't think we have any curative options, but he is not ready to accept defeat by any means. His chest surgeon said after his third lung surgery that he was finished with options there. (Matt selectively doesn't remember that conversation)... He also thinks the Oncologist undertreated him chemotherapy wise. I am sure it's all fear talking, and I can't blame him.
I will bring up RFA and get information from our docs. I appreciate your input greatly.
Christine
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
| | | | | Joined: Jul 2009 Posts: 280 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jul 2009 Posts: 280 | We asked his doc yesterday about RFA, he said no one in our area does it, and the only uses he's heard of was on livers.
Sounds like we'll be traveling to different docs when the time comes to try it.
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | They likely do it a MDACC in Houston. Glenn had it done at Memorial Sloan Kettering in NYC on his lungs. For about 6 months they destroyed the largest of the lung lesions he had, leaving the small ones. They have to have the ability to do a CT guided needle insertion, and have someone on staff very familiar with doing it.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | |
| Forums23 Topics18,170 Posts196,930 Members13,105 | | Most Online458
Jan 16th, 2020 | | |
|
