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#125728 12-05-2010 03:11 PM
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Posts: 96
BrandyK Offline OP
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I am dealing with emotional overload right now and need a break but have upcoming surgeries and know that I probably won't be getting one soon. You heal from one surgery and start to feel better and have to go back in for another. It is such a roller coaster physically and emotionally.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #125780 12-06-2010 07:49 PM
Joined: Jan 2009
Posts: 1,844
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Brandy,

Each of us has a burden to bear in this life. Some have heavier burdens then others...harder paths to walk and we can be overwhelmed at times. That is why we have our support networks both in our everyday life and online, to vent and help cope.

What helped me was knowing I had people on OCF that could relate to what I was going through, provide both answers and support...and sincere friendships based on common experiences. Some even gave me hope by showing me a real example of having to walk a tougher road then I, yet still continuing to fight and love life. We are here for you Brandy.

Keep your chin up you.

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #125837 12-07-2010 09:53 PM
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Posts: 96
BrandyK Offline OP
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Thanks Eric. I normally am pretty good about everything and laugh a lot. For some reason lately I have been able to cry at the drop of a hat. I haven't been on here as much as I probably should for support. I don't have a lot of questions as I usually have peace about everything going on with the cancer side of things.

I am sure we have all been there as you just start to feel better after one surgery and have to go back for another. That is what I have been dealing with and have a colon resection in Jan as they found 2 large polyps (precancerous) and then a few months later I will be having more on my mouth. Hard to see time for a break when you know part of your future.

Sorry if I seem like I am complaining as I am not. Just venting.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #125855 12-08-2010 06:43 AM
Joined: Sep 2010
Posts: 179
"OCF Down Under"
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Posts: 179
Brandy,
You have every right to vent/complain!! It's tough what you are going through. We are here to listen and hopefully offer some comfort. My thoughts are with you, hoping all goes well with all the surgeries and you won't need to think about them anymore.

Minh


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
Joined: Nov 2010
Posts: 27
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Hi Brandy!

I do hope you are feeling better! When my husband was going through months of one surgery after another, it helped him to keep in the loop at work (He loves his job!) and also to watch some comedy! We started watching some funky looking male English comedian who was wearing dresses and heels! Eddie Izzard. He made both of us laugh so hard it almost killed him when he had his tummy tube put in! Now, daily, he watches a clip from YouTube of some standup comedian to start his day!

I know it is easy to fall into the gutter and more than difficult to get out! Try some comedy! Here is one for you!

[video:youtube]pAOLOGGftTY[/video]


Wife of Tom, 42
SCC/Tonsil DX 9/23/2010
PEG/Port 11/2010
TX Begins 11/16/2010
Chemo ended 12/28/2010
Radiation ended 1/6/2011
Neutropenia 1/7/2011
Osteoradionecrosis 09/2011
Jaw Resection/Flap 01/2012
*********************
How do you want to be remembered?


Mrs. V #125900 12-08-2010 07:20 PM
Joined: Jan 2009
Posts: 1,844
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Brandy,

If anyone has earned the right to complain is us cancer patients...it's OK to vent, if you can't do it here where else could you and have a hope that anyone could relate? Vent away my dear. This site isn't just about getting your questions answered. This site is about finding people that can relate to what you are going through, what you are feeling and getting an encouraging word for someone who's walked a similar path. This site is also about giving back for the help and support received. That's why I continue to read these forums even though I have very few questions anymore.

Mrs V...you are now cool in my book! I have all of Eddie Izzards DVD's, my wife and I are huge fans. We watched his entire library when I was hospitalized. (this was said in the voice of James Mason)


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #125910 12-08-2010 10:00 PM
Joined: Sep 2009
Posts: 96
BrandyK Offline OP
Supporting Member (50+ posts)
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Joined: Sep 2009
Posts: 96
Thanks guys. I do like comedy and laugh quite often. Me and my parents actually went to see Jeff Dunham in person last year. Was a good time. I saw Robin Williams on Jay Leno in Nov 2010. Pretty good. You can find it on YouTube it will be part one. I loved my last job and the people but have not been able to work since April 09. I am working on some things but I don't always have the motivation.

Last edited by BrandyK; 12-08-2010 10:08 PM.

31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #125993 12-10-2010 09:31 AM
Joined: May 2009
Posts: 1,412
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Joined: May 2009
Posts: 1,412
I know exactly what you mean about needing a break! We are here for each other. I love this place, and come here often just to read and a lot of times vent about the constant worry or new worries. You will get through this, and this too shall pass. I have to keep reminding myself of that.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12

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