#12588 10-20-2007 02:41 PM | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Nov 2006 Posts: 167 Likes: 1 | Well what a week. Monday I went for my CT Scan and when they went to inject the contrast, it blew the IV right out of my arm. Boy is that stuff sticky. Then on Wednesday I saw my RO and he was pleased with my recovery. We got to talking about Biotene products and which ones I use and is getting in touch with them for samples for other patients. Thursday morning I saw my ENT and she was very pleased with my recovery and asked if I would talk to a couple of associcates. I did and I was asked to help in an OC public screening at the NASCAR race in Atlanta on October 27th. I am going to take this and run with it. I have talked to Brian and he is going to arm me with all the data I could possibly use. Folks, OCF will shine here. Last, I saw my MO he was pleased with what he saw. He was so pleased he gave me a flu shot. Am I glad he wasn't mad at me. All in all, it was a very good week for me. I am so glad I can do something to give back in a manner that will bring this disease to the fore front with people who don't even know it exist. They are expecting 100,000 people that weekend and they have 12 doctors and a boatload of assistants all ready lined up with 5 survivors on the roster.I am really looking foward to this. I will keep everybody updated as things happen. 
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | |
#12589 10-20-2007 03:37 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | BILL
WOW that is wonderful news !! Both that you are feeling and doing well and that you can help to edcuate others !! I know myself to think that you can make a difference in One persons life ..makes it almost bearable to have gone through !!! I am waiting to hear all the details of your event !!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#12590 10-20-2007 03:41 PM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2007 Posts: 179 | Great news Bill, Good luck to you health wise and with the event. LJ
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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#12591 10-20-2007 04:17 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Fantastic, Bill! We're SO very proud of you and know that you accomplish much! Keep it up!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#12592 10-20-2007 05:58 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | WTG Bill!!! Great to hear of all your success this week!
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#12593 10-20-2007 08:41 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Bill that is the best news,and what a great way to spread the word.
I am sure you will be a brilliant advocate and you can combine it with something you love so much ...CARS.
Thanks for all your help and advice about minewhich i still havent got back yet.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#12594 10-20-2007 09:06 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Bill, that is SO fantastic!! Both your checkups AND your opportunity to participate at the Nascar event. Shine on OCF and shine on BIll!!
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#12595 10-21-2007 09:02 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Bill, that is so awesome! I wish I were there to help out......however, I will be watching the race and routing for my favorite driver, yep, you got it, JUNIOR, #8 !! God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#12596 10-21-2007 09:13 AM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Bill
what is the date on the event ?
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#12597 10-21-2007 11:36 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Well done on every count Bill!
My partner is an avid Formula One fan (Think that's Europe equivalent of Nascar!)
What a fab way nto get the message out and good on yer!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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