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#12572 10-17-2007 07:22 AM
Joined: May 2007
Posts: 632
"Above & Beyond" Member (300+ posts)
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"Above & Beyond" Member (300+ posts)

Joined: May 2007
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There has been a lot of positive stuff recently about returning to work.
Some because 'How would I survive without, financially'?
Some 'It's getting back to normal'
I'm confused about what to do.
I'm a teacher--have specialised in Special Needs for umpteen years (Noah's son was afraid of drowning!)
and after my dad's death in 2005, decided I'd had enough of it all and it was 'time for me', albeit on a reduced income.
I applied for, and took, early retirement--then was begged to go back 2 days a week in the dedicated Autistic Provision of the school. I decided I would try it for a year (giving it my all, as have done in every job)
Got first symptoms of my jaw cancer in January this year, in spite of increasing pain and swelling whilst waiting for appointments, carried on working until the day was called from school to have my biopsy at end of May.
The rest of diagnosis, further diagnosis, incurable status is history.
Now, as I look, and sometimes feel, okay, people have started asking me if/when I'm going back to work.
Most of me wants to enjoy whatever/whenever time I have left--but one little part says that 'officially' saying I'm not going back means I'm totally accepting the 'death' diagnosis. You know the 'Do what you need to whilst you still can' bit?
Finance isn't much of an issue--plus I rally WANT to come to CA and see my daughter, but don't feel well enough right now and can't get insurance anyway!
Anyone got any thoughts on this one for me??

Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#12573 10-17-2007 08:04 AM
Joined: Feb 2005
Posts: 2,019
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Patient Advocate (old timer, 2000 posts)

Joined: Feb 2005
Posts: 2,019
Brenda, If you love your job with a passion, perhaps going back to it is the right thing to do. If not, and if you don't need to go back for financial reasons, do what you DO love with a passion. Don't look at it as "accepting the death diagnosis" (except in the sense that we all have a death diagnosis hanging over us), look at it as being more aware of the value of your life.

My "2 cents" as they say on this side of the pond.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#12574 10-17-2007 08:09 AM
Joined: May 2007
Posts: 632
"Above & Beyond" Member (300+ posts)
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Posts: 632
I did love it with a passion Nelie--I SOOOOOOOOOO love the kids! But the paperwork, the 'new and uncommitted' colleagues, the physical demands as well as the emotional and mental ones--just don't feel 'up to them' any more---but then feel a wuss/wimp for feeling like that!
Bren


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#12575 10-17-2007 08:53 AM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
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"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Bren, step back love aand smell the coffee.If you can find enough things to do to fill your day then why put yourself through the aggro of all that beurocracy paperwork and stress.

Why not go back as a volunteer,work when you feel like it and when you dont then dont.Let someone else have the responsibility and you have the fun part.
Come and visit me lol or i will come and visit you.Do things that make you happy Bren thats what is all about.


You could always do a Jane Tomlinson and start training for next years Great North Run..


liz xxx


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#12576 10-17-2007 11:09 AM
Joined: Jan 2007
Posts: 97
Supporting Member (50+ posts)
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Joined: Jan 2007
Posts: 97
Hi Brenda-

I agree with Liz, maybe you could do some volunteer work in the classroom, or tutor some kids individually, on your own timeframe?

I quit my job when I found out about my new diagnoses, although I was an office manager and there wasn't much personal fufillment in it anyway. But my life these days is about enjoying every moment and making things easy on my family. I struggled a lot at first with that whole "what should I do with the time I have left". For me it's really about the little everyday pleasures rather than big things like climbing Mount Everest or going on a cruise round the world. I enjoy spending lots of time with my son, but I also have daycare(since I spend a ton of time getting treatments). Since I have the daycare available I can also do things like see a movie in the middle of the day, have lunch with a friend, cook up an elaborate dinner, or spend a few hours bargain hunting.
So if you can find a way to work a little on your terms, and that makes you feel good, you should go for it. Otherwise, I recommend a life of leisure! wink
Melissa


Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
#12577 10-17-2007 01:14 PM
Joined: Jan 2007
Posts: 97
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Jan 2007
Posts: 97
Brenda-
One more thing, about coming to CA to see your daughter - have you thought about just coming anyway, without the insurance? If you started feeling bad you could just get a flight home, right?
I'm thinking about a trip to Prague to visit a friend in a few months, and if I can't get travel coverage, I might just wing it.


Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
#12578 10-17-2007 04:46 PM
Joined: Jan 2007
Posts: 735
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jan 2007
Posts: 735
Brenda


MY advice ... Follow your heart , but listen to your body . I know you LOVE those kids and I know the impact that they have on your life , as I too work with Autistic children.

So we both know as well the physical strain it takes on you and the mental and emotional. For me I needed it I felt it was best for me and finacially it was needed. BUt now I am out for 8 weeks AGAIN ! UGHHHHH

You need to reach deep and decide, Maybe you can go very limited part time or even volunteer so that you have that contact but not nessacarilly the responsibilty. I know I am not staying away for 8 weeks I can't . And I know you understand why ..I had just gotten instructional control, I cant stay away for 8 weeks and go back in or I am at square one and it will be sooo physical when I go back .

So I am going to go in every now and then to visit and sit in so that they see me there and still know that I am there .BUT I wont be dealing with behaviors. SO I hope you can search your heart and do what is best for you ... CA sounds awful nice too !!


Shar


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery

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