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julieSW Offline OP
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Michelle Ann -
Thank you. I am so sorry to hear what you are going through! I hope your treatment went well for you today. 5 weeks to find it. What were your first signs to lead you to discover this? If you really do not wish to talk about it I surely understand and appreciate your input.

Prayers for you. smile


JAS
julieSW #128868 01-31-2011 06:20 PM
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I called today and the girl who answered the phone asked me to hold - came back and told me since it is a lump it is probably scar tissue and that if it starts to look exactly like the last lesion (Which in my opinion also was a lump) to call back. Ok lump lesion I guess I didn't know what it first looked like until it was there for a few months before. Didn't leave me feeling very comfortable waiting until the 2nd week of March.


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julieSW #128871 01-31-2011 07:23 PM
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Julie,

You have to be your own advocate sometimes my dear and verbally put people in their place to get the answers or actions that you want.

I would call tomorrow, talk to the insensative dumbass again and tell them you want seen on the next available opening they have or you'll be seeing another medical professional. Tell her you haven't been trained to differentiate lumps from potentially cancerous lesions, that's the ENT's job and they best be on it ASAP.

If she gives you lip or any run around, start barkin, if that's not your cup of tea, I'll call for you and trust me nobody wants that.

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #128876 01-31-2011 07:52 PM
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Hi, Julie,

I agree with Eric. Be a squeaky wheel. Tell the girl answering the phone that YOU CANNOT WAIT and you need to get in ASAP.

Also, can you take someone with you to your appointments who can be a second set of ears? It is important for you to understand the information the DR. is giving you. It can all be very overwhelming. And write down all your questions and bring them with you. Make sure the Dr. sticks around to answer your questions. Many times when the Doc was halfway out the door I said, "Wait, I have more questions". He came back and answered every one of them.

All the best-
Anita


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
EricS #128892 01-31-2011 10:34 PM
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julieSW Offline OP
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Thank you Eric and Anita -
I do hear you. It is up to me to speak up... I thought I did pretty good calling just to ask. I got a nice giggle from Eric's response - thank you. That is pretty much what I really wanted to say... When I grow up I would like to be able to speak up just like you. blush I will call them again tomorrow. What is the difference if they see me soon or in March.

Again thanks for the nudge, I will call.




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julieSW #128926 02-01-2011 01:30 PM
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Hope you called. Sometimes in our desire to put things behind us we put off doing what we should. If you are concerned - then you need to see the doctor. Simple as that. If they try to put you off - go see someone else. It`s your health at stake.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #128936 02-01-2011 05:54 PM
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Thank you Cheryl. Best wishes to you on Feb 4th. I did try to call today, we are Wisconsin where all the nasty weather is hitting, businesses closed early. I will try again tomorrow.


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julieSW #128945 02-01-2011 07:40 PM
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Thanks and best of luck to you - we are supposed to get some snow too - but nothin compared to what's happening on your side of the border! Take care and good luck with the dr.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #128948 02-01-2011 08:50 PM
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Julie...maybe there wouldn't be a huge difference if you waited till March physiologically...but the psychological benefits are what count. Anything to help peace of mind in my opinion is worth the push...and let's be real, these dicks work for you so don't let them forget that. I hate the attitude that somehow they are doing YOU a favor for the hard earned $ they are charging you.



Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #129123 02-04-2011 06:54 PM
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julieSW Offline OP
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I called again today and they were finally open. The lady I talked to this time was very good compared to the last lady. I was really impressed when she asked me if I could go to one of their other locations in another city on Monday as the OS would be at that location. AND if I was running late from my other appt to just call and they would fit me in. Wow what a difference from the first person. She just told me to take my antibiotics like usual before coming in case he wants to remove it again I can get it done Monday. I am SO happy.


JAS
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