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Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Buried back on page two of the Introduce Yourself forum is an offer from PMR, a research company. PMR cancer research Since Brian locked the post to keep OCF members from posting what the survey is about, I will honor that. I don't think it "contaminates" anything though to share that they treated me well.
While the web site on that post does not work, the phone number did. When I called, they said that study was for active cancer not remission or NED, but they took my info for future reference. It was a pleasant surprise when they called me back and called my wife also and put us into two different groups.
I wanted to validate Brian's decision to allow PMR to post here and solicit OCF members for their survey. If Brian vets something, you can count on it.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: May 2007
Posts: 622
Likes: 1
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 622
Likes: 1
+1


18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking

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