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My husband's cousin said the same thing! Actually it was, "did you have a stroke or something?"


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: May 2009
Posts: 1,412
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We had our Oral Cancer walk today. Someone wanted to know my story so I sat down and told her. She then said she wanted to aska personal question. She prefaced by saying that since I did not msoke, drink, or have HPV and was so young, "was there a relationship with this cancer and my weight?" I was really offended by that comment. I did not let it show because she drove three hours to come to the walk, her daughter is a student of the OU dental hygiene clinic that helped organize the walk. It sure made me angry that someone could even bring up weight into the picture.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Posts: 701
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Angelia, you handled that with grace! Good for you. She was insensitive and ignorant. Next time someone offends you, throw it back to them by asking, "why do you ask that? Have you done any clinical research on the relationship of (weight) and OC?"



Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Nov 2010
Posts: 36
"OCF Canuck"
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"OCF Canuck"
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When people on the street ask how I am, I always smile my now crooked smile and always say " I am fine thank you, for what I have I am doing very well...how are you?" I find it puts people at ease and they can either escape easily or stay to chat.


55 yrs, Female, smoked for 4 yrs 35 yrs. ago, SCC right underside tongue and floor of mouth, laser surgery took 1/3 tongue Aug 2010, 3 weeks later in Sept right neck dissection 40 nodes removed with 1microscopic spot in one node. No chemo or radiation.
Joined: Nov 2010
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"OCF Canuck"
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Angelia good for you, that was handled with grace as Anita said. Some people are clods.


55 yrs, Female, smoked for 4 yrs 35 yrs. ago, SCC right underside tongue and floor of mouth, laser surgery took 1/3 tongue Aug 2010, 3 weeks later in Sept right neck dissection 40 nodes removed with 1microscopic spot in one node. No chemo or radiation.
Joined: Sep 2008
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I want to point out that the ignorance does apply to other conditions. My step son is 42 and has had type 1 diabetes (juvenile onset) since he was 9. He works out and eats carefully, aside from the occasional junk food which he has to pay for by taking more insulin, and even though there's hardly an ounce of fat on his body people are constantly thinking that his lifestyle somehow caused his diabetes. He gets very upset about that. It's type 2 diabetes that is associated with lifestyle. No one knows the exact cause of type 1. But then of course people assume that my lifestyle caused my cancer, and maybe that's true, though I quit smoking 22 years ago and have been a light drinker for quite a few years. I can't remember the last time I was actually drunk but it's been years. But if you have one of these diseases, why, you just must have done something to bring it upon yourself, right?


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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I just had a conversation about cancer with my sister, who is a Nurse Practitioner. She has been in the oncology arena for quite a while. The bottom line is that we can do everything right and still get cancer. The misconception among many people is that those who have or had cancer must have done something to get it, like eat the wrong foods, not flossing, too much stress, etc (the list goes on). While many behaviors have risks associated with disease, and there are other behaviors that have benefits associated with health and vitality. Anyone can get cancer.

It's a challenge for anyone with a serious health issue to answer probing questions by the curious regarding lifestyle choices. A strategy that works for me is to refer the questioner (especially if it is not a family member or close friend) to this website for OC, as well as other respected sites for more information (NIH, ACS, etc). "If you are really interested in this disease then I encourage you to go to (OCF, NIH, ACS) to research more on this because you really don't know what you're talking about."

When others overstep that boundary and their questions or comments make you feel bad, angry, hurt, or misunderstood, empower yourself to take a stand.


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Nov 2010
Posts: 74
Supporting Member (50+ posts)
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Posts: 74
How about this one....A coworker tole me that if I had gone to church every Sunday and knew Jesus I wouldnt have cancer! Who knew?


4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16
plantgirl #125147 11-23-2010 05:05 PM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Posts: 3,082
Plantgirl

I'm pretty sure your co-worker wasn't Catholic. We even have Patron Saints of Cancer, like St. Aldequndis, the Patron Saint of Breast Cancer who died of that cancer. (I first learned of her at a Komen Walk for the Cure blog) The Catholic party line is that the Saints certainly knew Jesus. Plus we have a generic Patron Saint of Cancer: St. Peregrine Laziosi
Finally, I know I'm wicked but I would share this video with your co worker. It's from CNN about an oral cancer patient who saw Jesus in her MRI. And I'd tell the co worker that Jesus was in my MRI also which means you plantgirl will be taken up in the rapture and your co worker is going straight to hell.
JESUS in my MRI

Keep the Faith
Charm

Last edited by Charm2017; 11-23-2010 05:22 PM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #125154 11-23-2010 07:07 PM
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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PLantgirl, that is awful. I got to church every Sunday and am a Believer and I still got cancer. He is the one who helped me through it.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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