Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#124209 11-05-2010 12:35 PM
Joined: Aug 2010
Posts: 157
Nate82 Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Aug 2010
Posts: 157


SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
Nate82 #124210 11-05-2010 01:00 PM
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
You are sounding and looking mahvalous dahling....please don't cry...I so want to give you a hug Nate. You are doing everything you are supposed to be doing to fight this and I adore you and am so proud the way you are taking things that will help you feel better during radiation treatments and keeping yourself healthy! YOU are following the right path to win this battle. Hang in there Nate, keep yourself busy have a great weekend with friends and family! That baked potatoe sounds pretty good. smile


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
SUEZ #124245 11-05-2010 07:46 PM
Joined: Aug 2010
Posts: 157
Nate82 Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Aug 2010
Posts: 157
Thanks SUEZ!

Just had a bit harder day today...My Uncle who I love dearly and is the black sheep of our family called me shortly after my radiation. He survived throat cancer twice, both Stage IV and both times he was given a 5% survival rate. That was 5 years ago and he still cancer-free, sad part is he has been addicted to oxy contin and other medications as well as continued smoking and drinking. Needless to say, he was drunk when he called me today and was not being the best support system or motivation for me at the moment. And all I could tell myself was " Please lord, I am willing to change everything, do everything I can to go a different path and not destroy myself." " Please lord, I truly care about my life that I once took oh-so for granted and I just want to start over."

I guess it hit me really hard, I told my mom your story after the phone call from my Uncle and was just bluntly honest. If I am going to give this my every last bit of heart and soul, and someone who can give two shits about their life or fall in the " feel sorry for me " stage be able to beat this, why the hell cant I? I know we are owed nothing in this lifetime, but this same lifetime I learned you work hard and stay devoted to what you plan on accomplishing, boy I wish I would have taken that advice. I could have really been a great skateboarder, on tour in the band with my friends , a producer , artist , everything I ever wanted to be. This time I will not let the dream close down on me, I want to live and start my own support system for people in my age group who are not aware or who feel as alone as I do.

A young man, about 15-17 years of age was dropped off at the radiology building today by a school bus and it was not to meet up with his parents. He went behind the same doors as me and when he came out turned in his wrist band just as I did. Everything is just hitting me like a brick to the face, I just want to live. I do not want alcohol, or government crack , I want a family and to get married and tell my children about Tony Alva and the z-boys. Thank you for being there for me, I still have yet to see my mother cry over any of this, I feel I do most of it for her, sorry for such an emotional video post today.

Your Friend,
Nathan


SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
Nate82 #124247 11-05-2010 07:56 PM
Joined: Apr 2010
Posts: 201
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2010
Posts: 201
Hey Nate. No need to apologize for the emotional roller coaster you are on. You have a right too cry it out!!! You are right back in the storm of treatment again. Seeing my sister this part is the most emotional part you will endure. You are not going to be called a survivor for nothing. You have to battle the storm and come out the other side a warrior!!! My thoughts are with you.


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
You WILL beat this, Nate! There is never any need to apologize for showing your true, raw feelings. You have every right! You are telling it like it is and helping so many others in the process. And you are doing everything right to get yourself through this. When I see your videos, I am so reminded of my son and his treatment. There were so many times when I held back the tears as I watched him struggling to get thru each moment. I didn't want him to see me cry and know that I was not as strong as I pretended to be. But I did let the flood of tears flow when he was not around and for me, it really helped to have a good cry. He and I got through this and you will too.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Jul 2007
Posts: 939
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2007
Posts: 939
Nate,

Def, no apologies needed...we all understand. I am sure your mother has cried...she just doesn't want to do it in front of you. I know that I spent many moments alone outside of my house letting my tears fall and talking to God about my fears.

Regarding the ringing in your ears: This is a sign that the Cisplatin is damaging your hearing so you must tell your docs for sure. They will probably opt to switch you to another chemo drug(Carboplatin perhaps.) I would probably not wait till your next vist to the MO's office...call them now.

Hang in there..one day at a time,

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
Joined: Apr 2009
Posts: 329
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Apr 2009
Posts: 329
Nate...I've been watching your video's hang in there buddy.

Your Mom has cried, but not in front of you. I remember crying in the shower time and time again when my husband was going through cancer. The only time I cried in front of him was when he was diagnosed. He never saw me cry again, I felt I needed to be strong for both of us. I'm sure that's her feelings.

As far as your Uncle I would let it be known.... call me when your sober.

Take care and God Bless
Connie



SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.

CT Scan 9/11 clean, CT Scan 9/12 clean


Moffitt Cancer Center in Tampa, FL. A+.

My hometown Lockport, NY.



Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Right on, Connie - my "place" to cry was alone in the car on the drive home. It's not altogether safe to cry while driving though, so I wouldn't recommend it. Better to pull over until the "storm" passes. Besides it's not like you have windshield wipers on your eyes to clear the field of vision. It seems that most women, being right brain people are better able to express feelings and compassion, while men (left brainers) are better at logical, clear thinking, "get to the point" issues, but some men are lucky enough that in addition to all the left brain qualities, they also have some of the right brain qualities and can express compassion or shed a tear. And that's good. That's just my conclusion. wink


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Apr 2010
Posts: 201
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2010
Posts: 201
Yes Nate I believe she has cried it out. My water bill definatly went up after my sisters diagnosis for sure. Now not so much. It's not easy watching someone you love feel so down and you try your hardest as a caregiver to be strong for them. I never wanted my sister to see that I was scared also. She had enough on her plate.


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
What's happening, Nate? Saw your last video #16 and thinking about you lots. Let us know whenever you can how you are doing. Sending positive vibes your way, so keep hanging in there!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Page 1 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
iMarc845, amndcllns01, Jina, VintageMel, rahul320
13,105 Registered Users
Forum Statistics
Forums23
Topics18,170
Posts196,930
Members13,105
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5