#12402 10-07-2007 12:01 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Right on Minnie - I've been praying for you and the family.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#12403 10-07-2007 03:10 AM | Joined: Nov 2006 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 93 | Wonderful, fantastic, amazing
I am so happy for you and yours.
Maggie
caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
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#12404 10-07-2007 03:27 AM | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | Congratulations to you, and all my best to your family !
Very GOOD news!
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
#12405 10-07-2007 06:07 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Can't believe how good they have been to you at JOhns hopkins!! You are doing so well and no trach-whopee!!
Just rest and smile!!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#12406 10-07-2007 07:12 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Debbie, I have decided that NO TRACH is my favorite expression in the world right now. I was so scared of that thing, although I do think I would have done fine with it the second time around, knowing what to expect.
I've had a pretty good afternoon so far. Having a little trouble controling my pain because I hate using the Vicodin, it makes me loopy and puts me to sleep. I'm trying some extra strength tylenol so we'll see how that does. Might have to give in and use the vicodin for a few more days.
Have a great Sunday!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#12407 10-07-2007 07:16 AM | Joined: Apr 2002 Posts: 52 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2002 Posts: 52 | Wow Minnie!!!! That is fantastic news and so happy for you and your wonderful fmily.
It's amazing to me, that as bad as it is, it's always more bearable when it's not as bad as we expected.
Always think of you when I have an extra can of that nutrition stuff,that I don't really want.
My family is amazed how my terrible wounds have healed so well, nutrition, nutrition, Minnie.
Best wishes and luck to all
Marlene
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#12408 10-07-2007 09:29 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Hey Lady,
Use the vicodin and say your blessings, you deserve to sleep and rest right now and be pain free! and cancer free!! I am jumping for joy for you.
debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#12409 10-07-2007 09:33 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Minnie - re the Vicodin - I know what you mean about making you feel loopy. Once I got over the worse part of the pain, probably about a week, I started just taking 1/2 Vicodin at night - it helped me sleep. During the day I took Ibuprofen (Advil). I know docs always seem to recommend the ES Tylenol but I don't think it does much for this kind of pain - and I have always found Ibuprofen to work much better. It can be a little hard on your stomach, try to take after food or liquid....
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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#12410 10-07-2007 11:26 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Minnie, you know how HAPPY I am to read all of this.....it is absolutely wonderful news!!!!!whewwwwwwwwwwwwwwww! Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#12411 10-07-2007 11:37 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Hey girl, just go with the vicodon and live in a happy haze for now!!!!!!!!!!!
Told you Thursday would be a good day for us both!!!
Brenda x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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