| Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | [quote=sean]Davidcpa. One of my clients was just treated at Moffit in tampa for luekemia. He came back just a few weeks ago and speaks the world of them. Did you have that kind of an experience?[/quote]
I think David will answer as I will. We were very pleased with Moffitt and continue to see them for checkups. Top notch operation for sure. Our next visit is coming up on November 8th...our three year anniversary from end of treatment.
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2010 Posts: 142 | I told that one PET scan is equal to 500 xrays. I was not at all happy to hear that I discussed it with my surgeon and radiologist and while the MRI and ultrasound are not as "good". They did agree to use them. So that might be a good reason not to get one.
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer 1/18/10 Clr PET 1/27/10 Surgery found Perineural invasion 3/22/10 Began Rad 05/05/10 34 rads 8/19/10 Clr Pet Scan 12/13/10 Clr Ultra sound/biopsy 5/4/11 MRI Clear 8/2/11 All Clear 5/25/12 All Clear 6/3/2016 All Clear
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Re Moffitt, I have probably referred 10 plus H & N patients to my RO, Dr Trotti since I completed my Tx's 4 plus years ago and have taken at least 7 to their first consult. Not one dime in commission but that's another topic! Also for the last 3 years I have co taught with Dr T a half day H & N seminar to their med students and was filmed in a Q & A on my treatment experience at Moffitt which is on their web site. I also have participated in other seminars Moffitt has put on re H & N so I guess one might conclude that I am very high on Moffitt.
Now that being said I did have a few complaints during my Tx and even had the occasion to speak to the head of their hospital. She called me at home during the end or right after my Tx had ended. Granted I may be more demanding or logical (anal) than most but I did not hold back my opinions during or post Tx.
IMO no one CCC or other treating facility is going to be perfect but Moffitt has to be way up there and I was lucky to have been so close and I feel very lucky that I ended up with my treatment team of Dr Andy Trotti and Dr Tapan Padhya.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2009 Posts: 329 | I finally ended up at Moffitt Cancer Center after being pushed from one doctor to another for 4 months. Finally a Radiation Oncologist who I was sent to per an ENT Surgeon to have radiation sent me to Moffitt Cancer Center to see one of the top H&N surgeons. The RO said, you do not need radiation you need surgery because the tumor on my tongue was growing outward and not in, so the ENT Surgeon was wrong. The RO I was sent to followed my case from the beginning at Moffitt to the end...and with No Charge. He was beside himself reading my medical records, he was new in town, graduated from Harvard and worked at Mass. General.
I have nothing but good things to say about Moffitt and the staff in my opinion they are A++++.
What I don't know about Moffitt is if you can go there thinking you have a cancerous tumor or whether you have to be diagnosed with cancer by another physician then go there.
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2. Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | Joined: Jun 2010 Posts: 87 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2010 Posts: 87 | I also had an awesome experience with Moffitt-- David helped get me in quickly! I had an excisional biopsy done by an ENT here in Jacksonville first. When I got the pathology report (high grade MEC) that ENT referred me immediately to Shands Jax head/neck clinic. I really liked the surgeon there but he wanted to remove part of my jaw and do reconstruction because the tumor was up against the jaw. I went to Moffitt for a second opinion and ultimately had surgery there (and I still have my own original jaw-- just minus the outer lining!). I was treated by Dr. Judith McCaffrey (surgeon) at Moffitt and also saw the radiation oncologist at Moffitt- Dr. Rao (one of Dr. Trotti's associates).I am having radiation here in Jax but Dr. Rao did discuss my case with the radiation oncologist here. I think as healthcare professionals we expect a higher standard, and Moffitt definitely met my expectations!! If I were you I'd go down there-- sounds like you need some definitive answer one way or another. Good luck!
Susan Age 51, married with four kids age 11-18, 9/1/2010, Bx: high grade mucoepidermoid CA left sublingual gland. 10/8/2010, wide excision left floor of mouth, modified radical node dissection left neck. T1N0M0. IMRT started 11/22. Never smoked, light social drinker Also happen to be ICU RN | | | | Joined: Oct 2010 Posts: 4 Member | OP Member Joined: Oct 2010 Posts: 4 | Thank for all the replies everyone. I went back to the ENT today for another exam. He looked everything over again and re-scoped me. He said my tonsils are both large but nothing unusual about the left side or the left base of my tongue. The lumps on my left jaw are not large enough in his opinion to consider for needle aspiration. He said if it keeps getting worse he would take out my left tonsil. He suspects its a recuring virus that settled in my left tonsil. He said he was sure that it could not be cancer because either he would have seen it during the exam or the MRI would have found it. I am to check back up with him in three months or sooner if a dramatic change occurs. | | |
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